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IPF How To Cope with Sick Feelings
Lung Health | Last Active: Oct 19, 2022 | Replies (62)Comment receiving replies
I was diagnosed with IPF going on 6 years ago. I am still around to talk about it. There has been a lot of research done over the past several years that may develop into a cure. It is difficult but we need to keep a positive arritude and work toward develope a cure. The government Just contributed 62 million dollars to. Drug company with a promising drug. Try to keep your spirits positive.
Replies to "I was diagnosed with IPF going on 6 years ago. I am still around to talk..."
Ray, I hope that you are a good caregiver for your wife. It is so hard and so very important, especially when traveling. I feel guilty having my husband lug all of our baggage and carry my tanks and other heavy essentials. He doesn't ever complain so I must say that I am very lucky.
I don't want to sit around feeling sorry for myself. I need to get moving and push myself harder. Where have you traveled to? Have you found some places easier than others? What have you found to be helpful, as in wheelchair, or walker, portable oxygen concentrator? It would be nice to hear some traveling tips. I am lucky to have a wonderful husband, but we have yelled, screamed, and cried at each other more over the past 3 months, since my diagnosis, than ever throughout our marriage. It seems so easy to take out our frustrations on those we love. I need to stop showing my frustrations towards him and I need to stop playing the counterpart when he is angry Not easy to do. --Ann
Ray,
What is the drug you are talking about. I have been diagnosed with IPF earlier this year. What do you think about the stem cell therapy that is out there. Have you considered that at all?
Really? this is good news for a change...Congrats on your six yrs. what are you doing to remain healthy....are you exercising? I was diagnosed IPF (I want to say couple yrs but it is looking like it has been much longer. I am going back to Henry Ford for testing Friday, it's where I go for tests & the like & have a great team,I also have a pulmonary specialist near where I live I see.I am not on anything at present.I am so encouraged by your post & if you could give me more info I would be very grateful
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My wife have traveled a lot over the past two years. It's not easy but it is easier than sitting around waiting to die.