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IPF How To Cope with Sick Feelings

Lung Health | Last Active: Oct 19, 2022 | Replies (62)

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@annabeyta

Thank you, Linda, for your support. My family and friends don't really know what to do with me. I think they notice that I am not the cheerful soul that I was 3 months ago, before the diagnosis. But other than that, I don't think they understand the shock that I am feeling. I was thinking of creating a brief sheet of paper with the topic of IPF for Dummies, only not with those exact words, of course, to share with others. My family doesn't quite understand the "down" days that I have. They think that what I need may be psychological counseling and a quick walk around the block. They think that perhaps my sleepiness and aching joints are all in my mind. It is so comforting to find people on this website who have had my same symptoms and who have not ended up in a mental ward. They have not only survived past the statistical "end" date but are living meaningful lives. Thank you so much for reaching out to me and sharing some of your own stories. I will definitely check out the links that you listed on your reply. Blessings to you and your family. --Ann Abeyta

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Replies to "Thank you, Linda, for your support. My family and friends don't really know what to do..."

Ann: Sounds like a great plan !
I also encourage reading Dr Amit Sood's HAPPINESS book.
I had the honor and pleasure of being involved with Dr Sood's Paced Breathing Research Study 9 years ago, his teachings helped me accept my lung disease, move beyond the shock and stigma and live!
Let's stay Connected, ok?
hugs
linda

Ann you are not alone. I was diagnosed the week of Christmas & I've been on an emotional roller coaster. I fight arthritis & joint pain & terrible fatigue and get short of great just sitting or laying down or talking. I have an appointment at Mayo Clinic in a month and I'm hoping there's something they can do for me.
Keep your chin up

Dear Ann:
I am so grateful to the all amazing Lung Physicians (most respectfully) at Mayo Clinic.
Please keep me posted. I’m here for you on Connect! Have you checked out Dr Amit Sood’s amazing free app yet?
hugs
linda