Body temperature

@diverdown1 that is so bizarre but not shocking. I am worried about you and your situation. If i could help u, i soooo would. I sent a lengthy reply to ur soap box comment but it didnt go thru?!? I am blessed with a tight family all close by. I am on medicare and medicaid with my LC disability dating back to 3/1/22. Snap benefits for nov??? It will be okay for me cuz i will pay with ss check. If i need to borrow money towards end of check cycle, i borrow and pay back from family. I am very aware of my blessings and my heart breaks for anyone going thru this nightmare without strong family support...i count my close friends as family. My bff since 6th grade is an AIDS survivor. I thought i would lose him in the 80's-90's like other gay friends i had who didnt make it. I remember the stigma and the fear with the HIV virus. My bff has been saying for awhile that i need to get in a support group for LC. He said the sharing of info and the support of these groups was a lifeline for him. I never thought that he would someday be HIV undetectable. The lack of empathy or committment to science is deeply disturbing. This is what i believe with all my heart and soul...scientists and doctors go into their fields because they are passionate about helping people. I will not allow the naysayers to win. They are not leaders. The true leaders in med and science are gonna keep doing what they are passionate about...and save us. Love always wins. In my mind, im staying in my own lane driving a pink covertible breezing by them. I love to give them the middle finger in my mind as im passing. I refuse to pray for people like that. Although my aunt says i should. Lol not happening. I pray for humanity as a group and individuals who can make a positive difference. I feel only pity and apathy for the rest. There are always gonna be jerks in the world. Ur symptom of not feeling cold hmmmm my body is so sensitive to heat humidity and cold that my body temp can hit hypothermia or i have passed out from heat. Sending u big love!!! I have an appt with dept of aging to assist with the current open enrollment. Insurance options overwhelm me. Ur state has some strange rules. Pa has been good to me. Although i was harassed by state depts regarding whether i was ever truly employed as a permanent sub teacher in a middle school for many years. It got confusing when STS the company that employs subs in our state stated in a letter that i worked 2 consecutive days later in month of march. I never actually went to school those 2 days. I felt near death, couldnt get zoom to work, and basically was available via email for students and entered attendance. I couldnt believe they still paid me for that. Grateful though. I then had my daughter drop off my school computer and door scanner/badge. That was the end. I didnt get to say goodbye to my students!! Another time i was harassed for not having a vehicle anymore and is this why im not working?!? If mental tasks didnt cause PM, if i didnt have OI, i could get a virtual job with good salary/benefits doing executive admin work which i did in between teaching kindergarten in 90's and then subbing until this nightmare started.

@diverdown1 also as far as yoga. I have been doing it since i was little girl. I now go outside with my matt and forest bathe while doing seated yoga and meditation. I sit in lotus position. I keep an eye on my pulse. Yesterday did not go well when i experienced hypothermia. Ground was too cold. I move through yoga positions organically based on what feels good. Im certain there are wonderful youtube videos of seated yoga and our local JCC offers classes...usually this is for elderly. But our bodies are in bad shape so it works for us. I also have booked hotels with indoor pools in winter to escape cabin fever. Swimming and feeling light feels so good. Swimming is the best exercise for LC. Gentle and the feeling of weightlessness is such a relief from my body nonstop feeling heavy and resistant to movement. My brain is constantly trying to protect me and screaming that i should lay down. I have ignored it when i can. Every movement feels like an effort. Especially when ur experiencing tachycardia and SOB.

@pdoubrava Yesterday, I had to go to the Home Depot to get some things and since I moved back into my house, there are so many problems with the house. Most are things that I can deal with. After my partner passed, I had all the carpet ripped out, cleaned the walls, other things as he and I drank and smoked in here for decades. I moved out when I got sober, so he continued to live here and smoke, drink, etc. Anyway, long story short, I quit smoking about a year into my sobriety (2018) and I had to get that smell out of here before I moved back in. Also, one of the toilets upstairs has a broken tank. While I was at the Home Depot, the American Standard toilets were on a great sale. I decided to charge one. With the help of an associate, we got the box onto the cart. (I am still strong but I pay for it). When I got back home, I realized "How in the hell am I going to get this out of the car by myself." Luckily, I have a nice neighbor across the street and he was able to help me. I also unloaded some landscape pavers (35 actually). I fell asleep early last night and woke at around 8:00 this morning. I felt like I had been hit by a bus. My body hurts this morning. Honestly, though, I feel like I have to do things when I can do them. I always pay for it the next day, but I can't live in fear of tomorrow. It probably wasn't a good idea, but that is what I do. So, today, I have taken my medicine and I am waiting for it to kick in.

As far as health insurance, I am trying to stay on the marketplace. I do not qualify for medicaid due to my not having kids. Yes, Tennessee has some b#llsh#t laws. There are so many cracks people like me and others fall through and the legislature and Governor do not seem to care, as is with the ruling party at the moment. I know I will be okay, one way or another. I have to have hope. I am grateful for your posts. My partner grew up in Pittsburgh, and it is a beautiful state from what I got to see. I hope you are well and you hang in there too. We support each other here and that is why I love this community.

@diverdown1 i am just trying to come back from a bad crash. Havent been in here for awhile. This community is precious to me!! I remember the headaches of being a homeowner. Lots of maintenance and fixing stuff. I love that you have a nice neighbor that helped you!! It takes a village. I am still so physically strong when i have energy. I can lift heavy boxes and bins around in my room. Im sorting thru memorabilia. But afterwards, the next day, i paid the physical price. Recovered and tried again. Then started asking for help. Decided it wasnt worth it. Lol this last crash was due to many factors...too much time upright and too many mental tasks. Lesson learned. So grateful for you too and u are sooooo f****** right that we should never lose hope!!! Sending good energy right back atcha xxxooo

@pdoubrava I understand the physical price. I feel like I have to go ahead and do what I can when I feel like it even though I know that I will pay the next day. Yes, I hope is so important!!!!

Colder temps don’t bother me either. However, my husband does not understand why I am not cold.

@bertmom Yes, it is odd. It is 46 degrees here today and I went outside to grab my phone charger from my car and I can tell it is cold but I do not feel cold. It seems to change later in the day though.

Don’t worry since May 2022 i didn’t feel temperature always hot, i live in Mexico i feel about 73 different symptoms since that day that my doctors told me i have long covid. The stress doesn't help just understand your symptoms and live your life. You will have some limitations just modify your style of life because your body autonomy is lost. Since July I've finally felt chill again and my body is going to recover. I don't know how much more time will be in the long covid but I need to be patient and relax to be better.

@diverdown1 I totally agree. Life is to short. But I still usually pace myself pretty well. Peace, Q.