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IPF How To Cope with Sick Feelings
Lung Health | Last Active: Oct 19, 2022 | Replies (62)Comment receiving replies
I feel the same every day every muscle aches and joints my feet and ankle joints even hurt I'm tired and on 4 liters of oxygen when active and I still will get out of breath and have to stop and do breathing exercises I was in cellcept that shut my kidneys down to 50 percent working and I tried imuran and I was deathly ill throw up unable to eat and barely could keep liquids down for 6 days I won't take either one again I'm at a loss I'm in so much pain and the doctor does nothing I'm going to keep on hanging in there you too it's hard
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hi, kturchin i was dx with ipf 6 yrs ago and went thru the usual meds for ipf, imuran, prednisone, with insignificant results,then Esbriet was made available… i have been using for two n half yrs breathing tests are stable… i take NO other meds but use 02 24/7 4ltrs i feel as long as the oxygen is available and i can av9id contracting something else! i wll be around for awhile. i am 80, never smoked! Mayo dz me 2002 with hypersensitive pneumenitis, which cleared up for ten yrs and then ipf. i exercise very little due to fatigue sleep alot and just glad to be here!