← Return to Followup for Noninvasive High-Grade: Anyone chosen no more treatment?

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Profile picture for Colleen Young, Connect Director @colleenyoung

@openloc1949 and @jaxfl, I'd like to point out that the Community Guidelines ask to respect all members. In particular, guideline number 4 states:
"Show respect for members even when you do not share their views." read more https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

It is vital that we respect people's choice with respect to treatment and choosing when to discontinue a treatment. It's a personal choice. My father, too, chose to stop maintenance chemotherapy treatment when the side effects outweighed his quality of life. We (my father, the family and his care team) knew that the chemotherapy was not considered curative for his cancer recurrence (colorectal). It was always his choice when to decide to stop treatment. We supported his choice and didn't consider it fatalistic. Wed had more than year with him going his way. 🙂

@openloc1949, palliative care provides symptom management and comfort care at any stage of disease. It is particularly helpful when treatment is no longer curative. People can choose to have palliative care at any time. Hospice care on the other hand is specifically for end of life, when life expectancy is 6 months or less. I agree that both care provided by palliative and hospice care teams are compassionate and worth looking into. They also support family members. It sounds like you've looked into this.

@jaxfl, you're right, when non-muscle-invasive bladder cancer (NMIBC) does not respond to BCG treatment, there are still several treatment options available to explore. Some people choose to explore options available to them. Some may not.

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Replies to "@openloc1949 and @jaxfl, I'd like to point out that the Community Guidelines ask to respect all..."

@colleenyoung
Thank you, so well articulated. I meant the general term 'hospice', including all their programs.

@colleenyoung
Apparently from what Iam beginning to read, BCG treatment not only symptomatic but very expensive.