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@jennax , I got sent to a funny farm because the ER decide I was a threat and had a "temporary psychosis...if they had looked at my record and consulted (or maybe did 5 minuted of research) they'd have properly diagnosed this as 'Parkinson's Psychosis' which is a relatively common thing in Parkinson's patient......so I know personally how frustrated you feel....why they are focused on your mental health, that's just tunnel vision on the part of the medical profession. Yes, you sure have to be your own researcher, advocate and voice. It's also alarming that you've not been referred to a neurologist...the jerking, spasms, even the inability to speak are clearly neurological (yes, yes, mentors; I am not a trained professional. But I do my research carefully being sure to see multiple sources validating these self diagnoses, have managed to get doctors to look at some things differently) (plus, I have Parkinson's disease and all of us PD folks know that self-educating and advocacy is the only way to insure a more thorough treatment)
I've been to the ER twice to see if I was having a stroke, was told it was 'probably' a TIA," Later , was told by one of my doctors that I was diagnosed with insufficient data: you must have an MRI w/without contrast to rule out a stroke, and that just a Cat scan and bloodwork was not sufficient. You condition is just an amazing story of ...I dunno...a major fubar...please try to get a referral, and also be sure to research strokes (I haven't, but just check to see how long..how many days that you can wait and still detect a stroke.

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Replies to "@jennax , I got sent to a funny farm because the ER decide I was a..."

@bruizersmom thank you. I had a TIA two years after open brain surgery. The intern at the local teaching hospital discharged me with a prescription for sea sick pills although I kept falling -could not stand - speech was slurred. He denied both. Given a CT w/o contrast that was uninformative. Coincidentally saw a neurologist 2 days later. Described the event. She said “oh you had a stroke”