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Profile picture for jennax @jennax

Thank you for your response

Yes I immediately seen a GP who has diagnosed stoke symptoms as shock from
stopping Duxlotine
No CT referral

I was sent to drive! to another surgery for blood tests I somehow managed
to get myself,as the GP would not let me try and communicate. I couldn't
speak more than2-3 words at a time. And muscles seemed to jerk when I tried
to speak it was like I had MND
I was in a panic yes but it was not a panic attack.

22nd Oct 25 i had a burn feeling in my brain and slurred speech went to bed
woke up unable to speak next day.

I'm now paying for private CT because I feel so ill, and it's took more
than a few days to get my speech to regular speed. I'm having fizzing and
popping in my head 2 weeks later the pressure was so bad and atm I feel I'm
still having issues with speech.

I changed GP who instantly sent me to AE but again AE sent me home no beds.

No one acted FAST
No one ruled out a stroke by testing, not even the GP and I still cant get
anyone to see how this is effecting me.

It does not mention speech or jerky movements in any warning of sideffects
I had all the serious side effects yes but that's also side effects of a
stroke surley a GP would refer for tests.

I've contacted for legal help a number of solicitors all say it's not
covered because it mental health and difficult to prove especially clinical
negligence.

I'm obviously hoping it's not a stroke I experienced we will know once I
get the CT

But more alarminly it's awful to find out your not as important because all
people see is my mental illness not the serious symptoms I showed and
rightfully give me the care I needed.

I just want other persons to know how confusing it gets with medication
side effects.

If anything does happen to me I hope this goes to someway of helping my
family continue to fight. I've been in a position of feeling locked in my
body not being able to communicate I'm not ending my days like that I'm
really not.

Especially experiencing it on my own.

Many thanks for your concern ill update you for your page for others if it
turns out it is Duxlotine not a stroke.

Jenna

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Replies to "Thank you for your response Yes I immediately seen a GP who has diagnosed stoke symptoms..."

@jennax , I got sent to a funny farm because the ER decide I was a threat and had a "temporary psychosis...if they had looked at my record and consulted (or maybe did 5 minuted of research) they'd have properly diagnosed this as 'Parkinson's Psychosis' which is a relatively common thing in Parkinson's patient......so I know personally how frustrated you feel....why they are focused on your mental health, that's just tunnel vision on the part of the medical profession. Yes, you sure have to be your own researcher, advocate and voice. It's also alarming that you've not been referred to a neurologist...the jerking, spasms, even the inability to speak are clearly neurological (yes, yes, mentors; I am not a trained professional. But I do my research carefully being sure to see multiple sources validating these self diagnoses, have managed to get doctors to look at some things differently) (plus, I have Parkinson's disease and all of us PD folks know that self-educating and advocacy is the only way to insure a more thorough treatment)
I've been to the ER twice to see if I was having a stroke, was told it was 'probably' a TIA," Later , was told by one of my doctors that I was diagnosed with insufficient data: you must have an MRI w/without contrast to rule out a stroke, and that just a Cat scan and bloodwork was not sufficient. You condition is just an amazing story of ...I dunno...a major fubar...please try to get a referral, and also be sure to research strokes (I haven't, but just check to see how long..how many days that you can wait and still detect a stroke.

@jennax Update from this post
https://www.facebook.com/share/p/16XYoiYz5s/
After many attempts for help from NHS Including the Nurse at Westbury and Forest Healthcare GP Cinderford.
I Privately paid for my own MRI after being so Ill
I have been diagnosed with CSVD of the brain. Hence not being able to communicate.
Thank your your service and thank you for getting it so wrong leaving me to drive away and suffer totally alone 😔