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Replies to "i have IPF, dx about 5 years ago. I had been taking Espert for one year...."
I would love to know where you are from, what state? I think it is wonderful that you are a participant in a research program.
I have done this since my lung cancer diagnosis and surgery 9 years ago. My involvement in research as a patient really helps
my brain and body relax knowing the researchers find so many amazing wonderful procedures and medications to help us live
a good quality of life. And you get paid a little, thats awesome! Thank you for reaching our to CONNECT.
Sorry it took so long to reply. I live in Cedar Rapids,IA. I go to the University Of IA for the research program.
I take have been Pirfenidone 267mg X6 daily and I can not tell much difference either. It is just supposed to slow down the progression. I try to walk 1.0 hour daily and it helps. I participate in a research program and it doesn’t cost me anything. They pay me a very small amount to participate.