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vaugen (@vaugen)

IPF How To Cope with Sick Feelings

Lung Health | Last Active: Oct 19, 2022 | Replies (62)

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i have IPF, dx about 5 years ago. I had been taking Espert for one year. Hard to say if it is doing anything. It is very expensive and the side effects can be nausea, dizziness and feeling tired. I am not familiar with NAC so no heat there.The thing that seems to help me most is light exercise. I have a treadmill and i tr y to get in between 15 – 20 minutes daily. I quit my job last year for the same reasons you stated. I know that my disease is fatal and there is no cure at this time. My wife and i have done a lot of traveling since we stopped working. My feeling i that we will enjoy the time we have left. If a cure is found, then we are ahead of the game.

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I take have been Pirfenidone 267mg X6 daily and I can not tell much difference either. It is just supposed to slow down the progression. I try to walk 1.0 hour daily and it helps. I participate in a research program and it doesn’t cost me anything. They pay me a very small amount to participate.

Hi Raincrowe:
I would love to know where you are from, what state? I think it is wonderful that you are a participant in a research program.
I have done this since my lung cancer diagnosis and surgery 9 years ago. My involvement in research as a patient really helps
my brain and body relax knowing the researchers find so many amazing wonderful procedures and medications to help us live
a good quality of life. And you get paid a little, thats awesome! Thank you for reaching our to CONNECT.

Sorry it took so long to reply. I live in Cedar Rapids,IA. I go to the University Of IA for the research program.