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Profile picture for sarahvsw @sarahwatkins

I'm 59 and was diagnosed with HCM with LVOT obstruction in September when a heart murmur was detected during an appointment for a laceration. I had assumed my lightheadedness was all related to chronic sinusitis and allergies. I had some upper back (between my shoulder blades) and chest soreness which I attributed to posture/lack of upper body strength. I did notice that yard work made me much more tired this summer than the summer before. I exercised quite a bit prior to my diagnosis and I have an appointment with the Sports Cardiology Clinic and Cardiophysiologist coming up to go over my stress Echo with me and provide me with guidance on exercise going forward. I started Cardizem which has improved my BP tremendously. I was on Lisinopril prior to the diagnosis, but it wasn't working. A few weeks after the Cardizem start my chest soreness/tightness and pain between shoulder blades is mostly absent. I still get lightheaded from time to time. I'm not in quite as much of a panic now regarding the diagnosis as I was initially. Still a little nerve wracking as my symptoms were so gradual I just thought that's what it felt like to be me. I was really surprised by the diagnosis. Going through genetic testing now.

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Replies to "I'm 59 and was diagnosed with HCM with LVOT obstruction in September when a heart murmur..."

Hello there @sarahwatkins, it looks like this is your first post...so welcome to Connect!
It is shocking and surprising to learn you have this condition, isn't it?
But once you start to learn more about it, slowly things start coming together and you can start chalking up symptoms you've been having to not just your imagination...but HCM. And now you know you were not crazy!
I'm glad your panic has started to fade and you are moving forward with more testing and appointments for guidance.
You mention you are seeing a Sports Cardiology Clinic and Cardio-physiologist shortly, and I wonder if they are educated in HCM.
That's going to be important as you go forward, not just for exercising advice, but for treatment of symptoms and monitoring your HCM.
HCM is a sneaky condition and can progress slowly or suddenly and you will want an expert you can trust.
Staying hydrated is important with HCM and paying attention to your body. You know you better than anyone, so it's up to you be vigilant and your own best advocate.
Have you read some of the posts here on Connect from other members with HCM?
Are you aware of any physicians that specialize in the treatment of HCM in your area?