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Myxofibrosarcoma: What treatments did you have?

Posted by jonezzi @jonezzi, Sep 24, 2022

I was diagnosed with Myxofibrosarcoma. It was large and a high-grade tumor. I had my surgery and will start my radiation treatment next week. My oncologist also stated that chemotherapy scheduled. My pathology report came back with no evidence on malignancy. Is chemo still necessary. I know it is my decision just needed to get a second opinion.

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cherylkolson | @cherylkolson | Nov 6 1:24pm
In reply to @colleenyoung "@cherylkolson, sorry to hear about your sister. When will she start treatment? What treatment is planned?" + (show)
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@cherylkolson, sorry to hear about your sister. When will she start treatment? What treatment is planned?

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@colleenyoung
She has an appointment tomorrow in LaCrosse. I believe it is a consultation with radiologist oncologist. Hopefully they schedule radiation treatments immediately.🙏 Gundersen is already consulting with Mayo in Rochester

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cherylkolson | @cherylkolson | Nov 6 1:31pm
In reply to @kenc "@cherylkolson I had a large sarcoma in my left thigh. The surgery was quite extensive in..." + (show)
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@cherylkolson I had a large sarcoma in my left thigh. The surgery was quite extensive in that the cancerous muscle was removed and replaced with a thigh muscle from my right leg. The shortly thereafter a small tumor was spotted in my left hip, which was surgically removed. My mobility has been deteriorating ever since. I have now reenrolled in in-home PT. and hoping that helps. Also, I can't understand why there is so much time between the time the cancer is diagnosed and the treatments to follow.

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@kenc
This tumor is 20.1cm x 9.9cm x8.7cm and growing. We don't know what all the letters and numbers mean but it's T4 NO MO stage IIIb I pray she doesn't lose her leg!

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cherylkolson | @cherylkolson | Nov 6 1:34pm

I don't understand why doctors don't order a full body PET scan. Wouldn't that show all of everything that's going on?

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