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georgiagurl's presentation is actually quite similar to mine. M-spike .1 to undetectable on SPEP (but always present on SIF). BJ protein in urine. Kidney function normal, PET negative for lesions, cardiac MRI negative for amyloid. But light chains off the charts (ratio 150:1 L:K, free L 1400). Just had my third BMB last month - 5-7% plasma cell, same as other two. My hem/onc fully expected the last two BMBs to show >10% (diagnostic threshold for MM) - he even hand-wrote for me the DVRd first-line regimen, expecting to begin treatment. So I'm still teetering on the treat / no-treat edge It's a complex disease.

And, as they say, diseases don't read medical texts.

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Replies to "georgiagurl's presentation is actually quite similar to mine. M-spike .1 to undetectable on SPEP (but always..."

@wesleym
You’re so right. It’s important that we don’t draw too much comparison between our various lab results and procedural outcomes. There are so many variables that it’s impossible to tell with any certainty what your lab results mean in relationship to mine. I think you summed it up nicely.

@wesleym It is very interesting that you had similar test results to mine! I love your last statement that "diseases don't read medical texts." My BMB is on this upcoming Tuesday so more to follow.