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Cavitary lesion and wall thickness ?
Lung Health | Last Active: Apr 6, 2017 | Replies (43)Comment receiving replies
@pamelasc1, Pamela interesting that you should ask this question! I asked this VERY question re: the use of Qvar a steroid inhaler on my March 7 appointment. I have been using Qvar for quite a few years .. 2 puffs 2x per day for my MAC and Bronchiectasis .. questioning how it could be affecting my immune system. Dr. Aksamit's answer for me? That dealing with MAC or Bronchiectasis .. the risk/reward was worth the continued use of a steroid inhaler. SO... I continue to use Qvar because I trust my Pulmonologist at Mayo Clinic .. BUT I think EACH of us must speak to our own Pulmonologist re our own particular health situation. Hope that info helps? Hugs! Katherine
(I will forward your " did not get my Connect today.. does this sometimes happen with any of you? ' to Colleen .. maybe she can check on it?)
Replies to "@pamelasc1, Pamela interesting that you should ask this question! I asked this VERY question re: the..."
@pamelasc1, Hi Pamela please let us know what this doctor says about the inhalers .. AFTER he gives you an opinion .. tell him about the opinion of my Mayo Clinic doctor .. watch his reaction! See how he reacts .. would be interesting! I can only tell you for me .. the Aerobika gets up mucus that I can't get up on my own with trying REALLY hard coughing! Keep us posted on how your appointment goes! Hugs! Katherine
KateYou just use the plain Aerobika? How many breaths, 15?ThanksKay S
@pamelasc1,Pamela by the way I teased Dr. Aksamit when I saw him that I had to find out about the Aerobika on our Forum .. that he had not mentioned it to me! Hmmm!
I ordered my Aerobika through http://www.aerobika-therapy.com/order-today/ . Number of breaths? Kinda until I feel like I need to cough .. usually for me around 20 or so. Then I do it until I am no longer getting up any more sputum ... that various .. sometimes using the Aerobika 2x .. sometimes several times. Hopes that helps! Katherine
I"ve been using saline since I never feel like I know when to stop with the Aerotbika. I don't see using the saline for the rest of my life though so this is good info. If I only have to do it a couple times, twice a day, then that is doable and something I can live with.
@jenblalock .. Jen, with the Aerobika .. I "stop" by judging the sputum .. how much I am getting up .. ie quantity and color. If I am still getting up quite a bit with "color" .. I know it is worth the effort because that means I am getting up "bad stuff" that CERTAINLY is a breeding ground for mycobacterium that I do NOT want down there! I mentioned previously a "private" issue that is kinda yucky but works for me . personally I do my Aerobika over the sink which is white .. that way I can "see" exactly the quantity and color of what is coming up. I also carefully use a Clorox cleaning spray for the sink. I am being honest in telling you my method because though it may be "yucky" it gives you a very clear idea of just what is going on in your lungs. Katherine
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Katherine - thanks so much for answering my question about the use of steroids and I am glad you asked the same question when you were at Mayo... I see a new ID doctor next week and am going to talk to him about this issue. I will get back to the group with what he feels I should do ... I have given thought to buying the Aerobika and will talk to him about that as well. Many thanks. It was just one day I did not get the Digest, so hopefully that glitch has been resolved. Thanks! Pamela