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pefishback avatar

Cord transplant anyone?

Blood Cancers & Disorders | Last Active: Nov 7, 2025 | Replies (5)

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Profile picture for Lori, Volunteer Mentor @loribmt

@pefishback Hi Paul, It’s cool you were able to meet with Steve. He’s been a great advocate for stem cell transplantation and shares his story with humor, which can help calm some jittery nerves.

I also read that article in the Star Tribune yesterday. There’s been so many advancements in this field, hopefully opening up the availability of a match for patients who have a challenging time with finding their DNA twin!

Looks like you’re a reader. I have a great book suggestion for you on the history of stem cell transplantation. It’s an excellent read! Living Medicine: Don Thomas, Marrow Transplantation and the Cell Therapy Revolution. By Fred Applebaum

Well, hopefully you won’t require the BMt in the future but if you do, you’ll know you’ve done your research and can enter into that adventure well prepared. I’m here, along with numerous other members who have walked the walk and we’re happy to help out where we can.
So what’s your next steps? Are you in a watchful waiting period?

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Replies to "@pefishback Hi Paul, It’s cool you were able to meet with Steve. He’s been a great..."

@loribmt — thanks for the book suggestion. I’m having another biopsy done Tuesday, along with a special type of flow cytometry MRD test that looks for NPM1. It will help us determine whether certain pre-leukemia cells found at my time of diagnosis are now leukemic. If the biopsy shows remission and the NPM1-MRD test both come back negative, we will simply continue to monitor. If either test comes back positive, then we’ll move to a transplant.