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Are their support groups for Myelofibrosis?
Blood Cancers & Disorders | Last Active: Nov 8 5:06pm | Replies (14)Comment receiving replies
@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June and I’m just looking for Support.
Replies to "@davi0937 Wondering if you found a group specific to mylofibrosis. I too was diagnosed this June..."
@tbrittingham68 I also was diagnosed with secondary MF in June2025. Had ET for 33 years with no symptoms other than an enlarged spleen. Haven’t felt well or like myself since April. No medication until I get worse. I wish you well!
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@tbrittingham68 Welcome to Mayo Clinic Connect. While you won’t be able to meet in person, you’ve just joined a huge support group for myelofibrosis. It can be so helpful being able to speak with others who are walking along a similar path.
I’m putting in a link to introduce you to a couple of the members. You’ll meet people like @snakebite @davi0937 @1pearl who are all at different stages with their MF.
~What are treatments for myelofibrosis?
https://connect.mayoclinic.org/discussion/mylofibrosis-1/
There are so many discussions with our MF group that I’m not sure which would be most relevant for you, so here are the results of a quick search. Please feel free to scroll through results and to jump into any conversation to ask questions.
Search Results for Myelofibrosis:
https://connect.mayoclinic.org/search/
Are you currently involved in treatment for you MF or is this a mindful watching period for you?