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Husband developing memory issues
Caregivers: Dementia | Last Active: Nov 6 3:05pm | Replies (83)Comment receiving replies
Early diagnosis is the key. I am "lucky" my husband noticed he was having issues before I did. Thinking back though this now explains a lot of things that happened. We had to "fight" with doctors and be our own advocates for the proper diagnosis and care/treatment that we wanted. Leqembi had just been approved by the FDA when he received his diagnosis, and local doctors did not want to administer this new drug. Luckily, we prevailed, went to Mayo Clinic/Rochester and the neurologist there said that my husband would be a prime candidate to receive the drug. He received his 48th infusion today. Stay strong and don't be afraid to question doctors if you are not getting the answers that you need.
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@badlandsgirl , good for you both. I wonder if the doctors fully understand what the progression of dementia is really like for the patient and their caregivers. If so, I would think they would be glad to provide the option. The symptoms of dementia are so devastating……to me, it’s worth the risks. I would have encouraged my father to get the infusions. It was too late for him. I looked into the screening process and found this article. It’s very helpful, imo. I hope it’s allowed. If not, perhaps a mod will kindly remove it.
https://www.uchealth.org/today/first-patient-at-uchealth-receives-leqembi-new-treatment-for-alzheimers-disease/