Afraid it the treatment meds for osteoporosis

Posted by mahonlye @mahonlye, Oct 23 12:13pm

I’m 68 with latest spine score of-37. My body type is very thin with BMI 19- but I eat extremely healthy diet and do excellent exercise every day - no falls. I have no other health issues so dont need to take medications. I’m totally petrified to take any of the medications I’ve been told I need for treatment of osteoporosis. I don’t know what to do! I know breaking bones will be awful but I’m so weary of these poisons they want to put in my body.

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Profile picture for mcchesney @kathleen1314

Started with osteoporosis, then I began strontium citrate; my numbers went up steadily, afer beginning strontium citrate. Osteoporosis was in my femoral bone which is harder than the spinal area to change. After a few years, my endocrinologist said that I did not need him anymore, he released me, and told me to change nothing. My last dexa was in 2019; I am having another dexa at the end of this year, 2025.
In 2019 with that normal bone dexa, the percentage of improvement in my Tscores was 78.57%; I had my engineer husband who majored in math calculate the percentage for me. I checked it with AI, ha.
The tech who did my 2019 dexa told me that I was one of only 2 people whom she had seen in all her years of doing dexa scores who no longer had osteoporosis.
This is not an unusual tale of normal bones, no fractures and no side effects for strontium citrate users. Here are some strontium stories found on Inspire:
https://www.inspire.com/m/Kathleen1314/journal/d69831-strontium-users-stories-3-alternative-to-pharma-meds/

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@kathleen1314 Thanks for the information and links! If you have any more advice regarding dosage, I'd appreciate it.

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Hi, I too have been told about the treatment for osteoporosis. I’m already dealing with emphysema, two heart conditions, and osteoarthritis . Going on these meds scares me . I’m also lactose intolerant so no dairy for extra calcium. I take 1200 mgs of calcium a day with Vitamin D, zinc, magnesium, and Vitamin K.
I also workout every other day and try to eat well.
Good luck on your journey

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Profile picture for joshedwards @joshedwards

I am also a medical skeptic. A friend who has been on Fosamax for years, recently fell and broke her hip. The surgeon told her tha the Fosamax had not helped her. A lady doctor friend of mine said that it built bad bone. There are so many statements out there. Who do I believe? I do not take any drugs period.

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@joshedwards
My mom was put on fosamax for years. We found out when she had X-rays for something that there were small fractures in her back. This makes me very skeptical of these drugs.

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Profile picture for sizwhatitiz2 @sizwhatitiz2

Hi, I too have been told about the treatment for osteoporosis. I’m already dealing with emphysema, two heart conditions, and osteoarthritis . Going on these meds scares me . I’m also lactose intolerant so no dairy for extra calcium. I take 1200 mgs of calcium a day with Vitamin D, zinc, magnesium, and Vitamin K.
I also workout every other day and try to eat well.
Good luck on your journey

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@sizwhatitiz2 what I believe is -some docs don’t quite relate to the many meds or very strong meds some people already have to take…there can be drug interactions…it pays to be cautious and advocate for oneself .

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Profile picture for vga @vga

@kathleen1314 Thanks for the information and links! If you have any more advice regarding dosage, I'd appreciate it.

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@vga
I assume that you mean strontium citrate dosing. The only information which I can give you is what the research says. As per the research, 680 mg daily of strontium has a positive impact on osteoporosis. As per the research, 480 mg daily of strontium seemed to work on osteopenia.
Mots and comb research for strontium citrate, comparison on BoneLadies' blog:
https://strontiumforbones.blogspot.com/2020/
A compilation of research and posts about strontium on Inspire:
https://www.inspire.com/groups/bone-health-and-osteoporosis/discussion/dd823b-strontium-a-compilation-of-research-and-information/
What any of us decide to take for our osteoporosis is a complicated decision made up frequently of as much how we feel as what the research says. We need to feel safe and comfortable in our decisions in our own thoughts and taking into consideration our doctor's input because they frequently have a good handle on our medical history and what is causing our osteoporosis. So be sure and talk with a good endocrinologist and have all the appropriate tests. My endocrinologist told me that I did not need him any more and to change nothing.
One thing to bear in mind is that you may start and stop strontium citrate easily; that is not the case with some osteoporosis drugs.

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Profile picture for gently @gently

@marialyce
build as a verb can have the meaning of collect or increase. Foxamax causes bone to collect that would otherwise be lost. The bone it collects is older usually fissured and more brittle less vascular with fewer nerves and is bone that osteoclasts think needs to be replaced.
Except that osteoclasts don't think.
I do like your point. And I like knowing the mechanisms of action of each medication.
Joshedward's friend's surgeon can know if the friends bones were weak and brittle, but can't know if Fosamax had helped the friend prevented other fractures or/and delayed the fracture under consideration. Both of which are likely.

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Fosamax is an antireabsortive which maintains bone density. In the medical field, it is not known for bone building. If you are looking to build bone and go beyond maintenance you would take tymlos, forteo or Evenity.

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Hi @mahonlye, I am with you 100%. I tolerated Alendronate (Fosamax) and one injection of Prolia very well, but the rheumatologist I started seeing wants me to go on Tymlos, and the potential side effects of this drug are terrifying. I was shocked when I was told to get in bed to inject it, in the event heart palpitations and dizziness set in. I expressed my concerns with my primary care doctor, who did an EKG in her office. There was a little “blip” that she didn’t think was serious, but she suggested I see a cardiologist prior to starting the drug so I can get clearance from him. I also have low blood pressure, which may contribute to dizziness/lightheadedness.

I think as women we need to stand up to these drug companies somehow and question why it is these osteoporosis drugs are so damning on our bodies. While I understand not everyone experiences side effects and tolerates differently, we shouldn’t have to take a drug in bed every day for 18 months in the event it makes us sick(er). I hope one day this type of “activism” if you will, might happen. We’re still entitled to quality of life.

I am wishing you well. I am wishing all of us well.🦋

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Profile picture for sizwhatitiz2 @sizwhatitiz2

Hi, I too have been told about the treatment for osteoporosis. I’m already dealing with emphysema, two heart conditions, and osteoarthritis . Going on these meds scares me . I’m also lactose intolerant so no dairy for extra calcium. I take 1200 mgs of calcium a day with Vitamin D, zinc, magnesium, and Vitamin K.
I also workout every other day and try to eat well.
Good luck on your journey

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Profile picture for beachesanddreams @beachesanddreams

Hi @mahonlye, I am with you 100%. I tolerated Alendronate (Fosamax) and one injection of Prolia very well, but the rheumatologist I started seeing wants me to go on Tymlos, and the potential side effects of this drug are terrifying. I was shocked when I was told to get in bed to inject it, in the event heart palpitations and dizziness set in. I expressed my concerns with my primary care doctor, who did an EKG in her office. There was a little “blip” that she didn’t think was serious, but she suggested I see a cardiologist prior to starting the drug so I can get clearance from him. I also have low blood pressure, which may contribute to dizziness/lightheadedness.

I think as women we need to stand up to these drug companies somehow and question why it is these osteoporosis drugs are so damning on our bodies. While I understand not everyone experiences side effects and tolerates differently, we shouldn’t have to take a drug in bed every day for 18 months in the event it makes us sick(er). I hope one day this type of “activism” if you will, might happen. We’re still entitled to quality of life.

I am wishing you well. I am wishing all of us well.🦋

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Perfectly said- agree 100%!!

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