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Is anyone dealing with CLL, Chronic Lymphoma Leukemia?
Blood Cancers & Disorders | Last Active: Nov 24 1:20pm | Replies (35)Comment receiving replies
Your comments are so very helpful. You have been on Brukinsa for over a year, basically with no side effects. How long do you need to take the medication? Do you have regular blood tests to check your blood count levels? If so, are they normal? Does CLL ever go into remission?
Replies to "Your comments are so very helpful. You have been on Brukinsa for over a year, basically..."
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Hello @panevills
I take it with 8oz of water at around 7:30am and 5:30pm each day. I assume I'll be on it until it no longer works for me. It's a habit now, just like eating - not an issue for me.
I see my Mayo doc (or his PA) about every 3 months. All my bloodwork, except for my Ig*, M Proteins, Kappa FLCs, are in the normal range. I don't feel any different than before (maybe slightly less energy w/CLL) - but everyone is different.
On Brukinsa (Zanubrutinib), I don't think you would go into remission. It helps keep the Leukocytes count in check. I think that's it. Btw, there are at least 3-4 newer treatment options, with more on the horizon, that could be used if/when Brukinsa stops working for me. So, I'm optimistic that I will have more than enough options to outlast me into my 90's! Masking really is the key to a healthy life for CLL folks.