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Jon Arachnoiditis SUCKS avatar

Arachnoiditis and suffer from severe pain

Chronic Pain | Last Active: Oct 19, 2024 | Replies (6)

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Who, reading this, has this horrible, debilitating disease and what are you doing about it? Is there any new medicine, treatment or hope you can give me for any comfort or relief? It seems that there is little understanding about this illness except for those who have it.

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Replies to "Who, reading this, has this horrible, debilitating disease and what are you doing about it? Is..."

I had adheasive arachnoiditis gor 13 years failed back surgery it’s getting worse pain wise as o get older walking is very difficult trying to remain independent it’s most important to me feel best when lying down

I have arachnoiditis. I have been to three large medical centers, including John’s Hopkins and have yet to find a doctor with any experience.

The writings by dr tenant are very useful
https://www.acmcrn.org/dr-tennant-materials