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MAC & Bronchiectasis | Last Active: 13 hours ago | Replies (335)
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@blm1007blm1007 I'm curious about why are you considering antibiotics now, when it seems your self-care routine has you stable.
Do you have any worsening symptoms? Does your CT show increasing nodules or cavities? Is your bronchiectasis becoming more severe (based on images)? Is the MAI "load" increasing in your sputum cultures?
I'm thinking about what I would do in your place (at 74), and unless my answer was "Yes" to at least three of the questions above, I would not entertain antibiotic therapy again. I quit before I was negative, continued 7% saline & airway clearance. My last two sputum cultures (2 years apart) were negative. I am about to reach 6 years without antibiotics, and I can still recall how awful I felt.
Remember, even on antibiotic therapy, you have to keep up everything you are doing now, so it's not as though they would simplify your life. And the antibiotics are HARD on the body, especially causing fatigue in many people (I was one!), possible unpleasant side effects and weight loss. Therapy will up your self-care burden - scheduling when to take the meds, monitoring vision and hearing, probable need for probiotics...
So I'm really curious what has led you to this possible change.