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Does anyone have multiple diagnosed illnesses besides P/D? I have 5+
Parkinson's Disease | Last Active: 7 hours ago | Replies (18)Comment receiving replies
Well, so far, @jatonlouise, I just learned that I probably have Planus Lichen (which AI says is Lichen Planus) because I have all the symptoms thereof (gee, thanks, jl) and my Thyroid has gone high and low, now being ignored, yes, your toenail fungus will spread (mine did), but I don't take meds for my osteopenia. But surely you must have Peripheral Neuropathy, Raynaud's, ummmm well I have some stuff I ignore because no one cares to do anything about it... Rosaecia, Bigeminy, had Tachycardia, but I had an ablation. Doesn't any of that sound familiar?Isn't all this just a barrel of fun???By the way, what kind of Specialist handles the Lichen? I might as well find out, so I can tackle this new one..
Carry on,jatonlouise!Bettyin sickness, wishing in health
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@bruizersmom
I can never keep it straight - just know 1 word is Lichen and the other Planus. I had a devil of a time finding out ehat it was. Silly me ! It's a skin problem, so I thought a dermitologust would have a clue. Nope! It's in my mouyh so I though my dentist might know what it was. Nope! So I went back to the dermitologist and the other dr. In the practice overheard our conversation and referred me to a practice specializing in disorders of the mucous nembranes. So that's where I got the diagnosis. The treatment is a salve with cortizone specially firmulated for inside the mouth.
Volon A haftsalbe
1mg/g
Triamcinolonacetonid
At least that's what it's called in Germany. The clinic I went to said I should come in to have it checked every 6 months. About 5% of the people who have this get mouth cancer so I should come back in 6 mos. But shortly thereafter I trued to crossed the street at a place I should have kniwn better than to try, and I underestimated how fast a car was coming while simultaneousely overestimated how fast I could walk and tried to cross the street but fell in front of a car -- scaring a poor young man to death--and ended up shattering breaking my arm which is niw keot together with a tutanium rod. This whole littke episode was probably related to my PD (which had not yet been diagnosed). Hence, I didn't keep my folliw-up with the mucus membrane clinic and by the timr my arm healed, I had started my magical mystery tour down the yellow brick road to PD diagnosis. -- a 2-3 year diversion. But my primary care gives me my prescrption for the cortizone salve. I eventually need to get it checked again to make sure I haven't welcomed cancer on my list of maladies. Jimmy the Greek in Las Vegas may be offering odds on thus so perhaos I ought to touch base with him . Hmmmm I'm seeing an imspiration for a board game for PD folks. We could call it "Mr. PD meets zMs. Co-morbidities". With the goal being to have your co- morbidities rescue you from Mr. PD. so you can hop onpathyto the Black Train before Stage 5 visits you.
BTW, if zlMs. Peripheral Myopathy has been to vidit she failed to leave a calling card thus far. O, I forgot about my sleep apnea. Wrestling with the CPAP with my shattered arm and my journey to the magical PDLandia became a tad much, and when I got a notice that the asbestos insulation in my CPAP was connected to cancer, I figured I' had enough justification for canceling my lease on the CPAP.
Don't know what specialty treats Planus Lichen Planus ( and it might be different in the US than it is in Germany. Options could be : 1) Immunologist or allergy doctor because it is an autoimmune disease: 2. dermatologist because it's skin;; 3. dentist because it's in your .mouth; 4 oncoligist becsuse it's a precursor to cancer;5. ENT because it's in the same neighborhood with your mouth.