Life after treatment: What I plan to do next, what about you?

Posted by deserthykr @deserthykr, May 13 8:10pm

I am looking to hear from others who decided to stop treatment for cancer. For me, it is esophageal cancer, but it doesn’t really matter what kind of cancer you have, I want to talk about “life after cancer: what’s next?”

So far I have:
1. Bought an Oura rung to keep better track of some aspects of my health
2. Changed my exercise routine
3. Decided to stay with my acupuncturist for neuropathy, as that to me is symptom management, not treatment
4. Planned a couple of trips in the short term
5. Met with a palliative care doctor
6. Started to, trying to, grow my hair back in
7. Scheduled a facial, a massage, and a Reiki session
8. Asked my partner to buy me a big batch of tulips

What about you? What else did you do “next”?

Interested in more discussions like this? Go to the Cancer Support Group.

Profile picture for vcsongradi @vcsongradi

I am in the process of deciding when to stop treatment. Stage IV rectal cancer (I have posts elsewhere on this site if anyone is interested in more detail), currently stable since June. I feel just fine apart from neuropathy in both feet which is numbness not pain, but will likely not resolve. I have just reached a point where my mental health is beginning to suffer. I'm tired of being tied down to appointments and infusions every two weeks with chemo ball for 46 hours. I was told that this schedule will be for the rest of my life -- there is no break, there is no cure, and there are no surgical options for me. I had a second opinion at Moffitt earlier this year, and I'm in the process of getting another opinion from MD Anderson in Houston. If they offer no other treatment beyond what I'm currently doing, it will make my decision much easier.

I'm 58, no kids, limited support network, no debt, both parents have passed, and I have just a few family members who live in other states. I have been traveling to bucket list places, but it seems very limited because I need to be back home for treatments every two weeks. I am currently fostering kittens, and I want to keep them, but feel I cannot give them much time with me. It wouldn't be fair to them to have to adjust to another home in a few years. It's easier to find homes when they are still small and cute.

When I decide to stop treatment, I will focus on traveling, going to musicals/ballets/symphony concerts, wonderful restaurants for great food (I'm fortunate that money is not an issue for me), good quality sleep every night which is challenging on those nights I'm wearing a chemo ball for 2 nights every two weeks, spending time with family/friends in other states, yard work/plants inside and out, going through my things to sell/toss so it is less for my beneficiary to do (which I think will be my brother but I'm not sure), getting paperwork in order to make it easier when the time comes, watching TV/movies/reading books I haven't read yet when I'm home relaxing, and allowing myself time to reflect and make peace with my decision. I do attend church and I do pray, so some of my peace comes from God and the promise of Heaven. I hope this response is helpful to you!

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@vcsongradi, you sound at peace with your decision and looking to live life to its fullest. My dad with colorectal cancer made a similar choice and never regretted it. It was a special time for him and my mom.

In the course of getting paperwork in order, have you considered looking into a residential hospice facility near you? I can't say enough good about planning for hospice care to help prepare for the best possible exit (stage left) 🙂 Hospice can be equally comforting for family and friends, supporting them and they focus on supporting you.

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Profile picture for pml @pml

Hi,
I think you have made a good decision! More importantly you feel that you made a good decision too. My husband had lung cancer and after he almost died from Keytruda treatments he quit all treatments! We ate healthy and that did include good quality steak and vegetables, enjoyed each other's company, did the things we liked doing such as watching John Wayne movies, doing puzzles, making cookies, praying together etc. My husband lived with Stage 4 lung cancer for 14 years until God called him home last July, 2024. Now, I'm adjusting to life alone but with God anything is possible and things are getting easier. All we have to do is ask for God's help and he's there. I'll say a prayer for you.
PML

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@pml I’m so, so sorry for the loss of your husband. I’m on my last radiation treatment today for skin cancer. Sadly, it’s caused me a lot of other problems and I’m currently also battling a UTI, not too fun. I could use some extra prayers for healing, ❤️‍🩹, for strength, for God's peace that I get through all of it. It is really hard at times. I will pray for you as well, thanks so much! God bless you!! 🙏💕💐💕🙏

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Profile picture for pianist3 @pianist3

@pml I’m so, so sorry for the loss of your husband. I’m on my last radiation treatment today for skin cancer. Sadly, it’s caused me a lot of other problems and I’m currently also battling a UTI, not too fun. I could use some extra prayers for healing, ❤️‍🩹, for strength, for God's peace that I get through all of it. It is really hard at times. I will pray for you as well, thanks so much! God bless you!! 🙏💕💐💕🙏

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@pianist3
Hi,
Thank you for your prayers! We can never have too many! I'm sorry you are experiencing negative issues with your treatment. But it does happen. However with God you will get through it all just fine! God is always there for us. I'll say a prayer for you also.
I wish you the best.
PML

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