Prostate Cancer Incontinence: What products do you use? Tips?

@script72
I agree. Tena moderate absorption work for me.

@davederousseau
After my RARP is April, I was expecting or at least hoping for minimal or even no incontinence. Did kegles for a month or so before surgery, very good health and physically fit, nerve sparing procedure at a center of excellence. To the contrary, my incontinence was pretty significant for the first couple of months and included the inconsistent flow you mentioned. However, I'm happy to report that with PT therapy, religious adherence to my kegles and other recommended exercises, and avoiding bladder irritating food and beverage, I'm down to one or two pads at day with the pads often being dry when changed. So continue with your protocols and remain positive as you will almost certainly improve significantly in the months to come.

@hirejohn
Thanks. I am exercising and starting to up my kegels, as the post-surgery pain down. Like you, I did prior kegels and am fit. Looking forward to improvements and return to a more active life, other than just walking. Thanks again for the details. Best to you.

On the one hand I would stay with what works. Tena could be cheaper and I prefer less. It is easier for me to go places with a Tena pad in my pocket to change if I need to

I now take Zytiga with constant urination with occasional urgency as a side effect. I take Gemtesa which helps me sleep but after taking Zytiga in the morning, I never know how the morning will go. If I am out and about, away from toilets, I slip a shield in my underwear just in case of a dribble. Hope that helps.

I'm 51 weeks post surgery, 4 weeks before radiation. I use Tena moderate during the day, one a day although heavy lifting or big effort like hiking or working out sometimes requires a second. When I work from home I usually go for the lightest Depend product because it's cheap and easy.

My husband is now about 10 weeks post op . He started with about 70 -90 ml in 24 hours and using overnight Depends for nighttime (although it was an overkill) and medium Tena pads for daytime. Over time his incontinence improved to now 15-20 ml in 24 hours (which is 1/2 of an oz) and he is using Depends shield during the day (2 a day for sanitary reasons). He is doing Kegels and some pelvic floor exercises but is not religious about them and needs reminding *sigh lol, since his urologist told him that he will be continent very soon . As always his "glass" is not half full but full and almost overflowing - lucky ducky.

Just want to echo affirmations and gratitude for the helpful comments. I am 69 and retired. I had my prostate removed on August 26th. The past two months have been challenging because of incontinence. At times it left me dispirited, glum and prone to moments of melancholy. My primary care doctor suggested antidepressants. Reluctance to go in a pharmaceutical direction was the incentive I needed to address my mental health. I started pushing myself more physically and stopped assuming things would get better with a passive approach. Active as a runner and hiker before surgery, and unable to do either other than walk slowly 4-5 miles day since surgery, I picked up my walking pace (from 20 minute miles to 15 minute miles) after the primary doctor visit and started hiking with a friend at low elevations with minimal incline. Diaper filling though these faster walks are, they have made a huge difference to my outlook.

Incontinence persists. I was wearing five Depends diaper briefs a day until this week. I stay dry at night with a light shield. A volunteer schedule keeps me moving and leaking during the day. I wear three Depends diaper briefs when out and about (9-12pm , 12-3pm , 3-6pm ) a guard at home in the evening sitting around with my wife and as mentioned a light shield in bed. I tried the guards during the day, but I leaked outside them - black pants with a loose waist band saved me from embarrassment. After suffering from dehydration after the first month I drink about the same amount of liquid now as I did pre-surgery. I'm inconsistent with the kegels. No erections so I pop a sidenafil once in a while to try to activate the nerves.

@johnfinch
If you’re leaking that much, you should be using a clamp at least some of the time during the day. The Wiesner clamp comes with 3 sizes. So you can pick what fits you best. Amazon sells them.

When I go to the gym or dancing, I wear it. I’m not leaking as much as you, if I was, I’d be wearing it more often.

@jeffmarc

Thanks for that suggestion. I had not given that any thought. Does it hurt? How long do you wear it for ?