← Return to HCM-ers: Introduce yourself or just say hi

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Profile picture for Debra, Volunteer Mentor @karukgirl

@debrasheila I join @walkinggirl in a warm welcome to Mayo Clinic Connect.
Question: Were you recently diagnosed and wondering what to expect from your new and unwelcomed HCM condition? Just wondering if you meant what to expect symptom-wise from HCM...

HCM is weird, and no two people will have the exact same symptoms. Although, many of us do share a lot in common. Shortness of breath on minimal exertion (at times) racing heart, fullness in the neck, chest pain, murmurs, and eating a big meal can wipe some out. There are good days, and bad days. And some progress super slow only needing a beta blocker, and others end up with open heart surgery.

It's important that your cardiologist is top notch in the treatment of this, and it's equally important that you learn as much as you can about this too. It's going to be your job to be your best friend and advocate for you. And if you're educated about this, you can help in the decision making in your case.

Allow me to add to your reading list:
https://www.4hcm.org/
Another Question: Are you near a Center of Excellence? When do you see your doctor next?

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Replies to "@debrasheila I join @walkinggirl in a warm welcome to Mayo Clinic Connect. Question: Were you recently..."

@karukgirl
My doctor is at St Francis in NY. I have my first echo since starting camzyos next week.