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Does anyone else feel isolated and misunderstood?
Polymyalgia Rheumatica (PMR) | Last Active: Nov 11, 2025 | Replies (52)Comment receiving replies
Listen to everything said here. We are your support group. No one understands because we still look the same. Sometimes I feel like standing on the table in front of my family and yelling can somebody please help around here because I don't feel good!!!!!
Re weight: My weight was so stationary. I weighed 117 for over 10 years. I started on 15mg and had instant relief. Like someone else mentioned--within 8 hours. So I'd question the rheumatoid arthritis possibility as someone else said OR maybe ask your rheumatologist if a little higher dose might help.
I have been on prednisone for nearly 8 months. I'm down to 4.5 mg. And 105 lbs!!! No one cares!
Seriously. This site has been a godsend for me. Post anything you want. You'll find help.
BTW has anyone else lost wieght????
Replies to "Listen to everything said here. We are your support group. No one understands because we still..."
@cyndiefromnc
Yes, I only lost a couple of pounds, but I'm very thin anyway. I am pretty sure I lost it because I have almost completely given up sugar, and it's hard to eat enough to make up for that, also Ensure really helps! I drink the max protein type, and it's loaded with micronutrients.
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@cyndiefromnc
I definitely have not gained weight. May have lost a pound or two. My appetite is not optimal as the prednisone is causing excess stomach acid which is uncomfortable and nauseating. Starting on famotidine tonight along with the pantoprozole at lunch. Hoping it helps relieve my stomach issues.
Would love to feel “normal” again. I’m on 10 mg prednisone and have been on it for about 9 weeks. Staring kevzara this week.