Hi, I'm Julie and live in the UK. Here's my story. Exactly 20 years ago at the age of 42, I went to my GP with palpitations. I had had the odd one before but these were all day long for 3 days. The nurse did an ECG and she told me that it showed that I had had a heart attack and asked if I had had any chest pain. I said none at all and she said it must have been a silent one then. She called the Doctor in, he took one look at the results and said the nurse must have had the leads on incorrectly so re-run, she did and it was the same. I was immediately referred to a cardiologist and I was very lucky to be introduced to someone who understood the condition and had written several articles on the topic. That's how it all started. He put me on bisoprolol and I have tolerated it really well for 20 years with hardly any palpitations. Any I do get or normally dietary related, like too much potassium or a supplement that interferes with the bisoprolol. I have severe hypertrophy of the septum and left ventricular wall and am so lucky for it to be non obstructive. For 20 years, the results of all my echos etc. have remained consistent except for my left atrium dia which has grown from 3.2 to 3.8. (Previous consultations never recorded volume for some reason). I have very good blood pressure and normal diastolic function due to the beta blocker. I hold on to my cardiologist once saying that I had wonderful arteries because there never seems to be any positive news with this condition. I remember asking him at early stage diagnosis whether there were any positives with the condition, he thought very pensively and after a few seconds said no. Still makes me smile. I should also say that I got my Mum screened too and my Sister, Mum has a milder version and is still here at the wonderful age of 92 but she is very breathless if she walks she has never had any treatment for the condition. Sister is negative. So unfortunately my wonderful cardiologist left for Singapore, I got a new one and he doesn't give me any of the detail I used to get on my results. In fact one appointment I asked for an echo and all he did was a bedside one and he scared the life out of me by telling me my left atrium was much larger and just said I could take water tablets if it was a problem. So I took myself off to a very knowledgeable structural heart specialist who really understands these conditions. I met him last week and had a full calibration and some tests I have never had before. The echo was much more involved with the pushing stomach technique can't remember the name, plus new blood tests Troponin and BNP which were significantly elevated (38 and 950 respectively but unfortunately no historic data to know whether this had changed in 20 years). Overall he was very positive. give me more advice and tips. We talked about my left atrium which has a volume of 55 (why does everything have to be so abnormal). and of course the risk of Afib which really worries me. I await his full notes but overall I came away reassured. It's all about symptoms of course and here I have been really lucky to-date. There is something I wanted to check with others. I do often get some discomfort in the chest, usually top left or directly over the heart, I can't call it pain but I have always thought it was trapped gas as it goes when gas moves. Do others get this? I really wonder sometimes whether it is angina but it's never painful. I also feel every heart beat, always have, I know when I have an extra beat/missed beat so I am really worried about Afib. My OH has it, I have felt his pulse and I can believe he can't he can't feel it, I wouldn't be able to cope with it so don't think about it. I have no SoB, no restrictions but know this may change so just take it as it comes. Well that's me sorry such a long story but might help those just diagnosed, I remember I was terrified particularly after being told I had had a heart attack.