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Profile picture for ceturtle @ceturtle

Sandy, you are not alone. I have never posted here but I’ve read so many comments and have learned so much. You will get through this and I absolutely know what you are going through. our stories sound a bit similar. I have had PMR and GCA for about 3 years. I was on prednisone for 2 years for both I am sure that my rheumatologist saved my eyesight because he asked so many questions and listened. Initially my primary doctor tried to put me on an antidepressant which she said would help with pain. It would take too long to tell my story but I was finally referred to a specialist who knew what it was within 5 min. Last fall my rheumatologist retired. The new doctor had great new ideas. He started me on tocilizumab and helped me taper off of prednisone. I’m doing well. I hope this it goes into remission one day but in the meantime my life is so much better. Please reach out and let us know how you are doing. My advice is trust your specialist and communicate about how you are feeling. Hang in there and I know you will be able to get back to your life before long.

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Replies to "Sandy, you are not alone. I have never posted here but I’ve read so many comments..."

@ceturtle
Thank you! I like your idea of listening to meditation. I think it really helps to calm you.
Hope you are doing well!
I’m just beginning this journey and I feel like it’s going to be a long one so staying calm and keeping my body moving are going to be important .