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Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 14 hours ago | Replies (335)

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@cdward1028 I posted my experience with Brinsupri I believe somewhere in this thread. I’ll summarize: after about 3 weeks on Brinsupri I developed increased phlegm, increased cough and did not feel well. Dropped off a sputum sample which showed inflammation (polys 4+) but no specific infection. No NTM, no pseudo. Pulmonary decided to treat me with abx and I’m feeling better. From my understanding it takes several months for Brinsupri to stabilize in your system. Does this help?

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@scoop
Glad you are feeling better. Wondering why you were treated with antibiotics if nothing cultured out? Could have been just a viral thing?

@scoop
What is your conclusion or do you have one? Do you think the Brinsupri caused the issue? And what is polys 4+?

@scoop hey scoop glad you are feeling better. I had a similar issue. I’ve been on Brinsupri since 9/5. Did real well until 10/16. That’s the day I got my Covid & Flu vaccination. On 10/18 I took a trip to my local hospital ER, with more sob, body aches, fatigue, and more phlegm, and chest tightness. I had blood work, chest x-ray done and it was determined that my sodium in blood was low 126, (normal is 136-146) its a condition known as Hyponatremia. Now I’ve had this before, But I’m convinced that the Covid or flu vaccine triggered this condition, so is my pcp. Just 2-3 weeks prior my Sodium levels were 134-135, and had been that for the previous 3 months. I’ve been told previously that hyponatremia is common in people with lung disease. Nevertheless the treatment is fluid restriction and salt tablets, and furosemide. I know that there is alot of controversy over the Covid vaccine, in fact Florida is really initiating anti vaccine rhetoric, although it is optional to residents, and to me it seems evidence appears to be growing that maybe this vaccine isn’t as safe & effective as we’ve been told. Anyway it leaves us with an even tougher decision!! Do we get the vaccine or not??? Thank you for listening sorry so long. Also I did file a complaint with the FDA, my pcp says nothing will be done with it, it’s just another data point for them.