@mattymatilda Thank you for the update. I bet you have a lot of questions as far as where your journey will go from there. Be sure to checkout discussions for multiple myeloma within this blood cancers support group!

So glad you have a hematologist oncologist who specializes in mm. What treatment plan do they have set up for you?
Ginger

@mattymatilda I am currently working with a hematologist/oncologist because of M-Spike and other abnormalities in my blood work. Just had more lab work done and will be going over those results next week. May I ask if the bone marrow biopsy is painful and are you in the hospital or as outpatient? Can you tell I am nervous of the unknown? Thank you for your support.

@mattymatilda ownership I felt like you have written my story. I have an oncologist hematologist that will not say the words. I am scheduled for my first bone marrow biopsy on Tuesday. I’m terrified not of the biopsy but the results. I was a year ago diagnosed with MGUS and I have suffered. Chronic fatigue has changed my trajectory of my life. I am so slow and wobbly and tired all the time I’m 77 and prior to last year I was busy Active, grandma of six world traveler and active member of my community in church. This has totally put the brakes on my life and I just struggle each day to get out for my 2 mile walk and it exhaust me to the point that I can do nothing else. The doctor said I may have slipped to marginal splenic lymphoma, but we just don’t know yet of course. Texas Oncology has been short on getting four page signed pathology report over to the hospital so they can set up my appointment. The scheduler at the hospital took pity on me and went ahead and scheduled an appointment so I could arrange for my son to take me. So I have it scheduled, but they don’t have the proper documents yet. Hopefully they will have them by Monday. How hard can it be to fax over four pages signed by the doctor. Nevertheless, I appreciate what you have said about the bone marrow biopsy because I need to know what I’m dealing with. The uncertainty is making my mind go to the dark side and I don’t need that. I need information I can work with. I think I can work with anything if I know what it is. I hope things go well for you. I hope you get the diagnosis and the treatment you need and deserve. We all need that. I just want to be someone’s priority. And yes, I’m in Houston and wouldn’t it be wonderful if I could go to MD Anderson However my insurance doesn’t go there isn’t that special ? My husband had cancer and was able to go to MD Anderson because he was still working and had the best insurance money goodbye. But it was before he retire he didn’t get to retire. There is not a Mayo Clinic near me either, I would have to do some serious traveling, but I would do it. If someone said come we have a trial going on. Come check us out I would do it. I want to live my goal for my whole life was 105 and this might just cut me short.