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Sandy, first sorry this is so long. I went through a similar deal in July, August and September of 2024. I woke up one morning and could hardly get out of bed with pelvic girdle, shoulder and clavicle pain that radiated down into my biceps. I went to my primary care doc. He, like me at the time, thought it was a an exercise related thing - at that time, I was running, swimming, lifting and doing HIIT on a stairmaster. He put me in PT, but it didn't help. So I stated researching and ended up self diagnosing. It took forever to get into a rheumatologist in November 2024 for various reasons including turning 65 in September and getting switched to new docs in my MC Advantage plan; he put me on 10 mg of prednisone. My research included looking for anything on the appropriate starting dose. I found one peer reviewed study done by NIH in 2011. It recommended 0.2 mg of prednisone for each kg of body weight. At that time I weighed 110 lbs (or 50 kg), which meant 10 mg per day was the appropriate dose. The original plan was to reduce the dose by 1 mg every 30 to 45 days, depending on pain level. Within 3 hours of that first 10 mg dose, the pelvic pain was gone and has not returned, knock on wood. The shoulder and clavicle pain has never gone completely away but I'm still lifting, albeit at lower weights and reps. I was way better.

I'm at 3.5 now and it's been a journey. My research indicated that starting doses were all over the place, without any reasons given. Some docs started at 10 mg a day, while others start at 20 or even higher, then try to get you to taper way too fast. I'm lucky my rheumatologist is open to me making decisions with his input of course.

One thing I'd consider if I was you if the 15 mg per day doesn't start offering relief, is weight based dosing. Convert your weight to kgs by multiplying your weight by 0.45359237 then multiply that number by 0.2 to get your dose in mg/day. As I've tapered I've made myself lose a few pounds to give me the best chance at getting through this. I started doing 12 to 14 day transitions when going down in mg per day and I started going down 0.5 mg instead of 1 mg. I started this at 5 mg because the 1 mg transitions at 7 and 6 were especially rough.

I currently transition as follows: old dose, old dose, new dose, old dose, old dose, new dose, old dose, new dose, new dose old dose, new dose, new dose, old dose, then start straight new dose for 30 days. It's worked decently for me so far, fingers and toes crossed. I hope this helps you. Good luck!

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Replies to "Sandy, first sorry this is so long. I went through a similar deal in July, August..."

@lagpmr2024
Very interesting about the weight dosing. I’ll figure that and see where I should be. Thank you, any info is helpful. This is such a crazy disorder 😵‍💫

@lagpmr2024 I suspected that dosage was weight-based, but your post has confirmed it. I was around 120 lbs when I saw the rheumatologist (now up to 125) and he put me on 10mg. I had not had total relief after 2 weeks so I asked him about upping the dose. He asked me to be patient and stay at 10mg. After another week or two I had total relief and then went on to feel younger and stronger every day, confirming his suggestion. Then, of course, I had to reduce and followed the dead slow taper. I had no problems tapering, but after a couple of months with no prednisone, I began to feel sore and stiff again, but not like PMR--like feeling really old. He recommended going on a maintenance dose of 2mg, but I did not want to risk further erosion of my bones, skin, and sleep. I have tried various OTC regimens and have found naproxen (Aleve) to have the best results. That has its own problems (histamine reaction to any alcohol, but I can live with that).

My point is, we are all different, including rheumatologists. Their training also sees to be all over the map, so forums like this, where actual suffers share their experiences, is vital. Thank you for sharing!