@lisanell

Were you taking Droxia, the name brand, or the generic HU? Congrats on your determined efforts that obviously paid off. It's not enough that we have this condition, but when we have to "prove" the horrible effects that we live with before a doctor believes our situation, that is unacceptable. Think of those who are not a brave as you and accept the effects of the drug because the doctor did not acknowledge the problem. There should be some type of response available to this type of situation. However, right now, the only option is to find another Hematologist. Again, you did well, I hope you find the answers, if not try to look elsewhere.
Best of luck to you!