Vitamin B12 and Neuropathy

Posted by lorirenee1 @lorirenee1, Dec 9, 2019

I went to my Neurologist and saw the nurse, because my neurologist had to cancel all her appointments. The nurse went thru all my blood work, and said my B12 is way too low for someone with Neuropathy. She repeated that B12 test, and again it is low. Because it is in a low, but normal range, 2 neurologists, 2 pain specialists, and 1 primary care physician of mine, did not catch that it was low. Only this nurse did, and now I need a week of daily Vitamin B12 shots, and then weekly, for a month. If you have neuropathy, B12 level should be at least at 400. Mine is at 185. I am praying Vitamin B12 helps. I really know nothing about Vitamin B12. Just found out mine is way too low for neuropathy. These doctors need to read the actual numbers, not just the highlights of what blood work is out of range. Maybe this could have been caught 2 years ago. I don't know if Vitamin B12 will help, but I am giving it a try. We all go thru so much.... Lori Renee

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I’m wondering if you got better results after increasing your B12?
This is a long period after your earlier posting re B12 levels
I was told my B12 was too high - and to reduce / not take any B supplements- I’m not sure this tracks - Will get more blood work done to follow up
Thanks !

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Greetings. I have in my history two bouts of peripheral neuropathy symptoms associated with low B12, that improved with my taking oral B12. The low B12 had been associated with PPI use (given for acid-peptic disease). I now continue to take oral B12 even though my levels have normalized. I do this based on soft evidence that as I age, it "may assist" with diminishing cognitive decline. I am not aware that there is any harm with this practice. Good luck to you.

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