← Return to Walking without a hip joint
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Replies to "I was born with a congenital hip dislocation and had 3 surgeries between the ages of..."
Lots of similarities in our histories. Without a left hip since 2018. Wanting to connect to compare. Pls respond if interested.
Hello...I have just joined this group. I lost my left hip last Feb due to osteomyelitis along with part of my Quadricep muscle and IT Band. I am finally able to get around with crutches and continue to exercise daily to build strength. I realize your post is from 2017, but if you are still in this group, I would love to hear how you are doing? Thank you....Cindy
Hello...I realize your post is very old and you might not even check the website any more, but I see you were in Michigan and perhaps still are. I am also in Michigan and had Girdlestone Resection in Feb 2022. I can get around with 2 crutches now but would love to chat further with you and see how you're doing now if that's possible. I'm 71 years old. Thank you for listening and I hope we can connect....Cindy
I'm about to have my 4th THR. 1st one came loose, 2nd got infected and now this one is loose and infected. Was told I will have to go several months without a hip. Having trouble wrapping my head around how I will do that. If you any tips or helpful hints, It would be much appreciated
I developed Sepsis which apparently spread from my mouth to my right hip socket where I had a 12 year old replacement hip. I had that removed, so currently have no right hip.
I have recently graduated from a wheelchair to a walker. since my femur was cut, my right leg is about 2.5 inches shorter than the left, I have a custom shoe lift.
I had this operation about 9 months ago. I had 3 teeth removed and was on antibiotics until 5 months ago.
Now I feel fortunate to be alive but have to deal with my dental work. I celebrated my 80th birthday yesterday.
Hello, yes both of my parents a have “hanging hip” or “floating hip” I have done a lot of research and it seems uncommon, I am a PTA and I’m trying to find the best exercises for them, especially for mom since her surgery is recent and she is battling infection right now. Many mistakes have been done since her fall, starting with a dr that decided to do a HEMI instead of a THR on an 80yo woman with an acetabulum that had osteoarthritis… anyway, lasted a year only and she was never able to walk because it was not cemented properly, the new hip prosthesis was very loose and moving inside the femur creating a million problems. She got that removed (last surgery) and now just waiting for infection to go away before a new attempt for replacement. She has been taking steps and getting out of bed and showering herself 2 weeks after surgery (surgery was done Dec 3 is now January 12) she moves around by herself with the walker, she is waiting now for her new high shoe. Dad has been without a hip for over a year and half now, he had to have nuclear medicine to kill the infection. Uses a 4.7 inch high shoe, drives stick and still goes to work, Dr is suggesting to do not attempt a new replacement because the chances of reinfection are very high and since his pelvis is basically mangled and really destroyed (5 diff surgeries prior due to accident) Dr says having a new one in it will be a terrible idea (his case should be on text book I’m telling you, he almost died on the OR, took 8 hours to remove the old prosthetic, too long to explain) Their PTs have no clue on what exercises to use so they quit PT. So, all they’ve done is move as much as they can and they pay attention to their bodies, I brought them therabands, massagers, tools, heating pads, TEN units, printed exercises, infused lotions, and more stuff to their home, I live very far from them but they listen to my instructions. I admire them immensely for not giving up because that kind of pain and struggle it’s only an idea for those who have never experienced it they way you and my parents have. All my respect to you.
Similar history here and I had girdlestone procedure done in 2018. Have been without hip joint or replacement since then. Very ambulatory but need to use a walker. Similar leg length discrepancy. Occasionally get angry muscles especially at night or if I overdo it. Still need some t3's primarily at night. Have wore out both shoulders as a result of decades use of cane and now walker - they want to do reverse total shoulder replacement but I am leery of same - significant pain in shoulders, neck and arms.
Not exactly but I just started with no hip on Thursday. I have a total of 5 surgeries. Took a ltt and think I'm allergic to the .03 percent nickel in the implant tried all the metals think I need a coated ti nitride.
Hello there my friend. I myself am currently going through the same exact dilemma as you have gone through with your hip! I successfully had my right hip replaced by Allen Associates and was up and going good in a few weeks. That was 2018 and it was three rotator cuff surgeries following the hip replacement in 2019. All three attempts were unsuccessful and as a result of carelessness and lack of concern to my complaints post surgery, my suprascapula nerve was severed during surgery and it went undiagnosed for so many months that when I finally found out through a nerve conduction study it was too late to repair the nerves and muscle atrophy is now permanent. So let’s talk about my left hip! After Covid holds on non emergent surgeries, I started seeking out a different surgeon to fix my left hip which was in very bad shape. I found a surgeon local to my location and he seemed to have all the right answers and wanted to jump right in and get started with the surgery, so I committed to his offer of services. Surgery for him was backed up and it was nearly three months before I would finally have surgery. During that wait, my hip became unbearable to even touch. It swoll up almost the diameter of a basketball and I could not even get out of bed to get to my surgeon to see what in the world was going on with it. My wife tried on several occasions going to his office with pictures and video of my hip and leg and she was told that I was going to have to “Tough” it out until surgery which was ,at this point; still three weeks away. I can not even explain the amount of severe pain my hip and leg went through during this swelling period! November 8, 2025, day of surgery had finally arrived. I had been stuck in the car for 5 days because I was scared to try and get out and make it up three sets of steps & back to bed and not being able to make it back to my car for surgery day! It took a team of people at the hospital to get me out the car and to the OR. My wife spoke to my surgeon and he told her to give him a couple to three hours and he would call her when surgery was complete. My wife left and 21 minutes later , on her way to get breakfast @ 620am; she was being called to come back to the hospital immediately! Upon arrival, she was told that my hip was completely infected with MRSA and two other infections and he had to put a drain in and immediately close me up to battle the infection that”HE WASNT AWARE OF AND SAID HE WAS NEVER INFORMED THAT MY HIP HAD GOTTEN SO BAD”! I spent the next 33 hours battling for my life with my hemoglobin down to 3 and 4 and a temperature of 103.5 to 104.3! Seven blood transfusions later I was back in surgery to clean out infection, put in an antibiotic spacer and close me up for 8 weeks of at home IV vancomycin 3 times a day via pic line! I walked for three days after completing antibiotics and was back in bed in a more painful condition w/o the swelling, just extreme pain, god awful spasms and overnight muscle atrophy it seemed. My leg from pelvic bone looking down towards my foot looked like a sucker, my femur bone being the sucker stick and my knee being the sucker ball! I was transported via EMS on the 11th of this month (April 11, 2025) and I am still at the hospital as I type this. This go around I have just three infections with MRSA being the heavy hitter, no hip joint or spacer anymore and my left leg is in an immobilization brace that has my knee hyperextended and so painful and am flip flopping between to potential antibiotics and just was informed three days after surgery that he had broken my femur during surgery and I have to have another surgery to install a plate and sleeve to strengthen by femur bone and my pelvic bone apparatchik needs reinforcement where the new prosthesis will eventually go. After surgery this coming Monday or Tuesday to install just the surgery damage fracture reinforcements then it’s back to IV at home antibiotics for 11 weeks this time then if all bloodwork and tests confirm infection is no longer present…….surgery 6 ……. Final prosthetic hip. I know I’ve gone off point with all the details of what I have gone through with this left hip and none of it have I ever questioned, blamed, look confused or didn’t know what was going on at all times but when that surgeon told me that I could walk without a hip joint and approximately 6 inches of femur missing, nothing has had my mind rapidly trying to visualize this in my head! I am a retired, 32 year career electrical engineer and have myself personal designed and manufactured some really neat and mind puzzling devices but I have tried to visualize in my head and even on paper the capability of walking without no hip joint and no connection to the femur. Please explain to me how this is possible because if it has validity to it I’m canceling all these repeat upcoming surgeries and getting my life back. Thanks
Rotsa ruc grasshopper! I went for my second Hip revision because the Socket Pocket eventually wore out after nearly 18 more years in my profession, Painting Professionally. First one was from a gate hitting my Ball Joint head where the solitary artery feeds it. At the time it was painful and the abused artery eventually bursted and the Head died. The orthopedic surgeon then was quite Excellent and ONLY a narrow scar marred my thigh. Legs were EQUAL LENGTH. After recovery I'd went onna Archery Elk hunt in Unit 5 & Harvested a 350 Point Bull that took 50th place in the Boon and Crockett record book. I digress. My second Hip surgery got me into a wheelchair. My mobility is MIA. Pro Bono infection as the free gifting required months of intravenous IV. The $30K custom prothesis was unused because after a year betwixt the CT scan and the surgery it didn't fit. That's in 2021 and I'm STILL looking for a competent surgeon to give me my Mobility Back. I Too have no HIP. SAFE travels brudder past 2022. I got offered a Shoe Lift to compensate. Hadn't taken the offer because the Second one shoulda Gone Right as my First was. I'm just a citizen sans surgery skills. My opinion only.