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@loribmt

Hi Lori and team, my main question at this time - when does it start getting better? I am 9 months post-transplant with fatigue keeps getting worse. Still getting dizzy, hazy, hard to stand and walk, cannot do simple tasks without going out of breath. Is this a typical recovery at 9 months? Just trying to get a realistic projection for how long I will need to "stick it out". Any input is much appreciated.

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Replies to "@loribmt Hi Lori and team, my main question at this time - when does it start..."

Hi @altabiznet, sorry for the delay in responding. I’m in the midst of traveling and was offline all day. Oh golly, I’m so sorry to hear you’re still having such a challenging time with recovery from your BMT.

After reading through the discussions in Connect, I’m sure you’re noticing that we all tend to have a litany of different stories about recovery. I’m post +6 years, so it’s been quite a while and I don’t recall the exact time-frame of the fatigue I experienced. Though I know the first 2 months were the worst. After that, there was a slow but steady gain of strength and stamina as the months passed.

I can’t say if what you’re experiencing is atypical or not. It’s certainly a concern and frustration for you and hard not to feel discouraged. Recovery from a BMT can be one of 3 leaps forward and then 2 steps back but you’d like to feel you’re gaining on this.
Medications can be cause fatigue as you mentioned to @jeffhampton. But there can also be side effects from the transplant itself due to the chemotherapy and/or gvhd. I’m assuming your transplant doctor and team are aware of your worsening symptoms. What have they suggested for you?
What are your blood results showing? Any decrease in hemoglobin? Have you had any heart related tests or pulmonary function tests?