← Return to Asking for help as the caregiver (husband 20 yrs with Parkinson's)

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Profile picture for elizajayne @elizajayne

Your posts resonate with me! We are Christians also and have strong faith in God. We wouldn't have got this far without Him. Do you think sometimes you actually feel guilty because you feel you should be able to keep going and be strong because of your faith, yet we are human and sometimes things just do get very heavy? I am 32 years old, been caring for my husband who has a degenerative neurological condition for 10 years. I grieve the loss of a normal relationship, a well spouse and a well father to our 2 girls. I feel guilty because I still have him, but it is no longer a reciprocal marriage and I do crave connection, converstion and warmth

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@elizajayne I pray you have family near by. We now live in a generational suite with our son and his family. It’s nice to know help is on the of door. Hugs to you and your family.

@elizajayne

You wrote: I grieve the loss of a normal relationship, a well spouse. I feel guilty because I still have him, but it is no longer a reciprocal marriage and I do crave connection, converstion and warmth.

I can so agree with that. I also feel bad when I get angry that I don't have those gifts anymore.