Family and friends deny long covid

Posted by suefish @suefish, Oct 6 11:53pm

Most of my family and a few friends, including a couple of MD’s, think that I either don’t have long covid or that I have a serious issue (such as dementia) also. I have had this for more than a year and have many signs: brain fog (worst), headaches, sinus congestion, sleepiness inappropriately, weird repeated dreams, and more. There are no significant clinics within a two hour drive. Can anyone name a place where I can at least get a diagnosis? The neurologist where I live blew me off. I’m in the old range but relatively in pretty good shape except for LC. Thanks to all of you who are presenting this opportunity to get help and information. @suefish

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pdoubrava | @pdoubrava | 5 days ago

In reply to @law59 "Hi @suefish may I suggest different avenue and dont recall if already suggested🙃. Most healthcare systems..." + (show)

@law59 patient advocates thru a healthcare system is great resource. When my dad had an aneurysm burst in his brain, i was told the surgery to clean the brain would happen after the weekend. I immediately got rep in hospital and surgery was done sat am!! Also when i was experiencing horrible gaslighting in early months of LC i requested a patient rep thru my health insurance. A medical team at the ins co review ur case and then have zoom session with ur drs.