Chronic Pain members - Welcome, please introduce yourself

Hello
I just joined this online support group. I am already feeling better knowing I am not alone with my chronic condition. This involves lower back surgeries and ongoing treatments. I often feel like no one understands what it is like to deal with daily pain and limited mobility. The fatigue makes even simple tasks at work and at home difficult. Some days, getting out of bed, walking, or sitting for long stretches feels overwhelming. Keeping up with household chores is tough, too. Still, I am well enough right now to take part in this group's activities. I want to end this message by wishing you all a good day of recovery and painless mobility.

Hi. I am 51 y.o. mom to four. I have ankylosing spondylitis and have recently been diagnosed with relapsing polychondritis as well. I've had big pain for many years but recently have become more slowed and limited by it. I'm still very hopeful. But I never met another with relapsing polychondritis, and I'm feeling quite alone with the magnitude and illness of that. Thanks!

78 YO Male in North Idaho with Chronic back pain that seems to be getting worse rather than better. Started out many years ago and over the years moved furniture for 10 years and drove truck for 21 years. 2 back surgeries, laminetctory, dissectomy, double fusion and more plus a lobotomy :_> Tired of it all. Some nights dont sleep, loss of appitite and all that goes along with pain.

@joelhoward1092 I’m not sure who I’m replying to. Which of the person who fell off the stairs and had 40 years of pain, I don’t know how you live through. I know spirituality is part of it, it’s so devastating. Please let me know if I’m responding to the right person.

hi, I’m not sure who I’m responding to or what group this is. Think it’s the chronic pain proof from neuropathy group. please correct me if I’m wrong!!!!
these groups are so informative, and emotionally connecting. I have neuropathy of my corneas, it’s getting harder to type to negotiate, which chat I am on, and who I’m responding to. I’ve had tea since 2003, I learned in July 2024, I toes on both feet froze, then came balance, problems, blurry vision, despite everything that I’ve done, nothing has worked. Now it’s all up and down my leg, my diaphragm is neuromuscular impaired, it’s hard to breathe, and my eyes are failing. My speech has gotten wobbly, so words don’t come out right. So I have to use Siri, because I can’t see, and I can’t go back and proofread I’ve been on so many different anti-seizure, drugs, and pain, drugs, I’ve tried alternative methods, acupuncture massage… Recently low-dose naltrexone …. Bad side effects, so I’m just looking for any info that anyone can provide about relief. I’ve read much worse accounts than mine, but we’re all in this together. I just don’t know why I keep looking for the message with my symptoms, metaphorically… I lost. I love other people’s thoughts, prayers for everyone.🙏

@lollie8 Very sorry to hear of your chronic neuropathy. Is it tingling and numbness or is there pain as well? Have you been advised to go for a trial of a pain pump. It can be life-changing. But not always. I hope you have a good day.

@enmerzergmailcom Hi, I am not the person who fell down the stairs, but I certainly have chronic pain. It can get very confusing on this forum when replying to someone, especially if it is an older post.

@joelhoward1092 i agree, I am giving up trying to follow, thanks. have you found any relief from chronic pain?

Hi. Im Terri. I have CRPS. I would like to hear how people deal with this disease, what their symptoms are, where they have gotten help and how they cope.
I'm new to this group and look forward to communicating with everyone who can help with CRPS

@enmerzergmailcom Sadly, I haven’t found any relief. I just had a spinal cord stimulator implanted about 3 weeks ago. I have a fair amount of mechanical/muscle pain, but the worst of it is nerve pain. Since that seems to be what SCS’s work best to control (nerve pain), I was very hopeful. But I can’t say that I am getting any relief so far. I know it can take several adjustments to fine tune the coverage, but I literally have not experienced any noticeable relief. So I am skeptical that making adjustments is really going to make it much better. I am starting to look into a pain pump if the SCS does not start providing some relief.