@sky86 Welcime - yes, scary. I was evaluated in mid-June, listed in early July, transplanted just last Sunday 10/26 and feeling overwhelmed a bit myself; however, do not despair - as @craigcraig suggests, hope you live in PHX or very near - I live in Tucson; however, many people in the community live within a few states from which they can travel.

First priority: yes, prepare for the evaluation - you will want to be made as aware as you can of his condition, your observations, your role. Start asking questions, tell them you need help, and they will help. As they are evaluating they will likely start doing some therapeutic work to manage his current symptoms as well as possible (are they being managed now by a hospital or doctor?). Be prepared to quickly flex to a test, doctor, etc, in the moment - Mayo does a great job of switching tactics on the fly to get more information about your partner’s condition and make the right determination with appropriate urgency.

Ask if you have a single point of contact (nurse coordinator) and how to reach that person if you haven’t already. You will be amazed at how much information each person you meet with throughout the week will know about your partner’s current state of health.

Reach out to the community, as you are! There are Zoom meetings each Thursday for pre and post liver transplant at Mayo, - ask a nurse for that info, or the social worker you will see - a great helper! There is also a caregiver Zoom session twice a month, I think on Fridays - again, ask.o

Start writing your questions now, ask even if you’re unsure who to ask - you will be helped! Keep a note of new questions as they come up.

Calm down, deep breaths, take care of you as much as you can. Pull in the support of friend and family, whoever that looks like for you ((which, like it or not, now includes US).

As I mentioned, I am currently in Phoenix, and will be happy to meet with you and my caregiver (sister), if we can arrange it, between me recovering, and working with a similar schedule as you while by body’s new normal trends start to emerge.

We’re staying really close to Mayo, and can meet, as I said. Right now I, it’s safest for me right there in B3 Phoenix, rather than out in the wild in Phoenix! Just let me know!

Sending positive energy and spirit!

Kelly