Connect
Discussion
Comment receiving replies
Replies to "@dolphfan exactly that - that you’ve had two falls at home now, are experiencing issues with..."
Autoimmune Diseases | Last Active: Oct 30, 2025 | Replies (9)
Comment receiving replies
@dolphfan exactly that - that you’ve had two falls at home now, are experiencing issues with your balance, and blurriness and your pain doctor said you should bring it up to your GP.
I recently went through this myself when I started a new drug and became ataxic. My doctor thought it had triggered MS. There was a flurry of blood work and they ordered 4 MRI’s - 1 of the brain and 3 of the spinal cord with and without contrast. In the end it wasn’t MS, it had actually unmasked myositis that had probably been there for a while. You definitely shouldn’t wait. Best of luck.
Replies to "@dolphfan exactly that - that you’ve had two falls at home now, are experiencing issues with..."
Connect
@pm56
Wow I'm sorry to hear that what is myositis? I have never really heard of that. My balance has always been an issue before starting the new meds we thought my balance was because of my back problems. But my balance is definitely getting worse and the pain doctor is concerned he has even done a few injections on my back (nerve blocks) to see if that would help but unfortunately nothing has changed. I have an appointment with my primary doctor in January but they did put me on a cancelation list so hopefully they can get me in sooner. Right now I just limit my walking I dont really go to stores unless I have to. (Our stores only have limited handicap parking and scooters). At home I pretty much limit the time I am standing to prevent me from falling and I document everything. That way I won't forget anything when I see the doctor. The thing is I'm not dizzy or I don't feel dizzy it's just when I'm standing and my legs just give out on me.