Whenever I noticed changes with my husband I would "journal" it and either bring it up at his next dr. appointment or email his dr. and go from there. Alot was overwhelming and challenging as time moved forward and I needed to make sure I was taking care of him the way he needed, to help us get thru all these challenges, so documenting was the best way for me so I could get the best advice from his doctor.
Strength, Peace and Hugs