← Return to Pain in upper thighs
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Replies to "I was diagnosed 5 months ago. Did BIG with no pain in my thigh but did..."
Hello @pjsammy, let me add my welcome to Mayo Connect and to the Parkinson's group. We would like to get to know you better! Please share with us, if you will, what symptoms led to your diagnosis as well as how long it took to diagnose the PD. Are you currently taking any meds? Share anything else that you think might be helpful to our PD community. We have discovered that as we learn from each other we become stronger! Let me introduce you to others in our group who share this PD diagnosis: @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris. I see that @mariemarie has already posted with you. Let's all take a moment to welcome @pjsammy to our group! Teresa
Welcome to the group @pjsammy. I have been the caregiver for my husband for a long time and, due to illness of my own, he is now in an assisted living facility. Whether or not it is for long term, I don't know. I want to bring him home but my doctor and my daughter keeps saying no. I do spend about 4 hours every day with him and when he's feeling good, will have the staff help him in the car and we go for a ride. He has very little speaking capabilities and that frustrates him immensely. This is a tough road you are on but you will get lots of support from this group. If I can do anything to make things easier for you, please let me know. TrishThe Redhead
Nice to hear from you @tntredhead! I have been wondering how you and your husband have been doing. I'm glad to hear that your husband is getting the care he needs and that you are able to take care of yourself as well. How nice that you can get your husband out for rides. That has to be good for him. Keep in touch. Teresa
Please say prayers for my family as my husband of 44 years is under hospice care and fading fast. Our only child had a stroke in her eye last week and can't fly so she and her family are driving to New Mexico from Maryland. I am so worried about them and wonder how I can go on without the love of my life by my side Trish
@tntredhead I am so sorry to hear of your husband's transition to Hospice. What a very difficult time for you and your family. My prayers go with you, your husband and your family at this difficult time. Keep us posted in the upcoming days and please feel free to share your feelings with us. We care about you! Teresa
Dear Trish,
Our thoughts are with you. I'm glad that your husband is in hospice care. I've heard many say that hospice allows you space to relinquish some of the caregiving duties so that you can concentrate on love and peace.
@IndianaScott has written about this.
Please reach out whenever you need to talk to someone. We're here.
Hi @tntredhead I am sorry to hear of your husband's and daughter's situations. The portion of your journey you are about to embark upon in hospice will be different, but hopefully offering you many new supports. Our hospice nurse did have a booklet titled 'Out of Sight' about what you might expect to be happening in your hospice journey. I found it helpful.
This is undoubtedly a tough, intensely sad, and challenging time. I found nothing truely prepares us for loss, so all I can say is please remember there are some here who are walking that path of loss and grief and we can offer willing ears to listen and broad shoulders to lean upon.
Peace and strength!
Thank you so much @indianscott. We celebrate 44 years tomorrow and I can't seem to get the tears to stop Sent from Trish's latest toy
Hello @pjsammy, It's been a while since I've heard from you. I hope you are doing well and adjusting to this new diagnosis of PD. Drop us a note and let us know how you are progressing. Teresa
Thanks, pj. Pain has gone away. Go figure. My primary said to take tylenol arthritis if it returns.