Medicare Plan D for someone with NTMs

Posted by paxmundi @paxmundi, Oct 25 4:05pm

I am about to leave Kaiser for a traditional Medicare plan and would like to know what plan D people who are being treated for NTMs (MAC, Psudomonas, Aspergillus, etc.) are choosing for 2026. I live in San Rafael, Northern California and will be treated at UCSF. I am wanting to get a plan that contains as many of the possibilities as possible as I don’t know what my treatment will entail.

I can leave Kaiser without undergoing medical underwriting because Kaiser is raising their rates and there is a Guarantee Issue exception for existing members of Senior Advantage plans.
Many thanks in advance.

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Profile picture for Sue, Volunteer Mentor @sueinmn

@kathyjjb Keep in mind that Medicare caps your out-of-pocket costs for Plan D. What is more important is what is included in their Formulary (list of covered drugs). Any "uncovered (unlisted) medication requires an appeal. We have found that the PBM Plan provider (Pharmacy Benefit Manager) is more important in success than the Plan - BCBS and CVS have been easier for us to deal with than United Health - we are in Minnesota.

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@sueinmn Thank you! I'm going to talk to a BPM after I identify the pharmacies that carry Brinsupri. Great idea! I do understand the $2100 cap is for those listed in respective Formulary. Unfortunately, the drugs that I was most interested were either not in the Formulary or not considered a standard treatment drug for MABC. As I previously mentioned, this was an issue with Nuzyra and still denied after 3 appeals. My ID doctor told me that this was pretty std and recommended another medication. Fortunately, I don't need at present but just want to plan ahead-just in case.

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Profile picture for paxmundi @paxmundi

@lulu1944 A person at Medicare.gov was very helpful today. Now I know that to check the formularies for Part D plans I need to know the dosages of the drugs, the quantity and the frequency of the prescription. That is another small research project since I am not presently taking any meds.

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@paxmundi Absolutely!

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Profile picture for lulu1944 @lulu1944

Me too. Had BCBS BlueMedicare Premier HMO. Got letter saying my plan was being discontinued. They also included papers to prove I have legal"right to issue" because my plan is being discontinued due to no fault of my own. Ive spent the last week looking and trying to find someone not trying to sell me a plan just to get help deciding on one! Heck I even left messages at Insurance broker sites a week ago. No one calling me back. It is so frustrating that our health are system is run by big money and big pharma. I remember the day when I worked in medical clinics and hospitals where drs closets were bursting at the seams with samples and even when I was the patient my dr would just hand me however many doses I needed and pat me on the back. I haven't had a dr offer me samples in probably 20 years.

I think I am going with Healthspring. Im worn out worrying about it! And I haven't even started treatment for my MAC diagnosis!

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@lulu1944 I may not have read your post(s) correctly and you may have already called your State Insurance Office for help. They can help with looking at the Advantage Plans with the D plan included, built into the insurance plan...meaning you are no longer on Original Medicare when you have Advantage Plan you are basically going right into and directly involved with an Insurance Carrier Plan. They can also help you with the Original Medicare Plan in which you choose a Supplemental Plan (Medigap) where you stay on Original Medicare and add a Supplemental Plan and a D Plan. You then pick and choose your D plan according to what medications the Plan D('s ) cover(s). You can change the D Plan each year during the open enrollment period if you need to change due to a change in mediations etc.
It is much easier to understand the Supplemental Plans because each plan is plainly explained .....Plans G, N, K L and possibly F for example vs the Advantage Plans are very difficult to understand because each insurance company can have differences from one another, somewhat.
Hope I am not repeating what you already know. As you know open enrollment gives you more time yet to grasp all this information. It can be very trying but as you know this decision is so important health wise, financial wise and the long term.
Barbara

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Profile picture for sherrig @sherrig

Each state has its list of Part D providers available. I am in Delaware. In reviewing the formulary lists and costs the best 2 companies I see are HealthSpring (previously Cigna) and WellCare. I looked at drugs for pseudomonas, MAC and some of the drugs to treat Abscessus. HealthSpring seems to cover Nuzyra (for Abscesses) WellCare doesn't cover that drug.

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@sherrig I spoke to HealthSpring today and learned NJH is not in network with NJH. I will keep looking-and hope I find something prior to December 7th.

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