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Preliminary Guidelines for Adult Bronchiectasis
MAC & Bronchiectasis | Last Active: Oct 31 11:34am | Replies (21)Comment receiving replies
@tcd518 I just googled "North American guidelines for adult bronchiectasis" and pertinent info came up. Does look similar to European guidelines. It's interesting how long-term macrolides are recommended during exasperations. Over the past 4-5 few years (prior to my 2024 NTM diagnosis), I have requested Azithromycin solely for its effectiveness-not knowing anything about bronchiectasis guidelines, only that they got rid of my fatigue and inflammation. I would tell the doctors, nothing else works. Now, I am concerned that following the European and now, NA guidelines could cause NTM to become macrolide resistant. Seems like a catch-22.
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@kathyjjb I have read other articles that suggest people who take 250 or 500 mg of Azithro or another macrolide three times a week, could take a ‘drug holiday’ over the summer months when there are fewer infections from RSV, flu, Covid..
My lung function is normal but I have Bronchiectasis in many areas and I produce lots of mucus that I must clear. My BE was likely due to untreated respiratory infections despite bringing all of this to my physician’s attention. (I encourage people to get second opinions!)
I’m taking 250 mg / 3 times a week right now to lessen inflammation and keep infections at bay. It also decreases the mucus production. I will take a break for at least four months in the late spring.
It’s so positive to see that Bronchiectasis is getting more attention. Perhaps more physicians will become more aware. A quick AI search and deeper dive into AI now provides some decent information!