@mycuppajava my husband has had myeloma for almost 16 years. His pain has always been well controlled, and he has only had one kidney injury, less than a month ago, which for all appearances seems to be recovering. He has had quite a few treatments over the years and is starting two new ones now.
I have found the International myeloma foundation to be really helpful. They have a newly diagnosed section, and a nurse you can call and ask questions. They also do regular seminars and call ins.
I agree wholeheartedly that you should seek out a hematologist that has plenty of experience with myeloma. We went to Mayo and asked for a recommendation. We travel an hour and a half to our doctor, but he is worth every mile.
My husband has had a pretty good quality of life all these years, just a limited weight capability.
Can you tell me more about your diagnosis?