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Profile picture for Ingegerd Enscoe, Alumni Mentor @astaingegerdm

@getwell88
My daughter also had a pituitary adenoma secreting large amounts of cortisol.
After surgery it took a long time for the body to adjust to normal hormone levels. She was having pain and fatigue for quite a while. However, with time she was feeling more normal.
I think the same is happening with you. Consider that your body was used to large amounts of 2 different hormones and then after surgery it has to adjust to more normal levels. The hormones affected every cell in your body. I understand that you are impatient but recovery does take time. It’s important that your doctors follow your healing and are satisfied with your test results.
We were not aware either what recovery would be like- we realized that people recovered differently- some felt normal much sooner. Usually, these patients had been diagnosed earlier and had not been exposed to high hormone levels for as long as my daughter had.
My daughter also saw a therapist for a while- someone who understood the difficulties when dealing with serious illness.

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@astaingegerdm

Thanks for your response. I’m very glad to hear your daughter is doing well and regret she had to go through it. Her experiencing it and you having a parents anguish of watching her suffer. Sharing your info was vey beneficial and I’m starting to think my system being out of whack for so long that returning to normal feels not normal. Best wishes to you and your family.