← Return to The Chat Room: A place to talk about this and that

Discussion
John, Volunteer Mentor avatar

The Chat Room: A place to talk about this and that

Just Want to Talk | Last Active: Nov 28, 2025 | Replies (224)

Comment receiving replies
Profile picture for slatesslates1 @slatesslates1

Where to go???? I’ve had an issue for many years with total exhaustion , can’t walk or stand for long times, heavy breathing with even the slightest bit of exertion. Many tests! Many specialists. We just moved and have a new PCP. He ran several of the same labs I already had, nothing stands out. Said I must have chronic fatigue. No word on what to do next, referral to any one. Only offer for a med to give me some energy maybe. I’ve looked up CF and I do t fit any specific criteria and doubt his diagnosis. I felt he just took the easy route and brushed me off. I need to find someone to do a full check, like the doctors in those TV shows that investigate mystery illnesses. We don’t have to money or time to wander
The country for answers. So frustrating.

Jump to this post


Replies to "Where to go???? I’ve had an issue for many years with total exhaustion , can’t walk..."

@slatesslates1
That is the sorry state of medical care in this country. The doctors either (1) don't care; (2) don't know; (3) don't have time to research because they are constrained by the health insurance industry who are only interested in profits. Sometimes what I do is call on either Mayo or Cleveland Clinics on my computer. I type in my question and mostly I feel I get better answers from them. If you have not already done so, try it. What do you have to lose?

@slatesslates1. I seem to have similar reactions with extreme fatigue and heavy breathing, especially while trying to walk. This is a new occurrence.
I have been told that I should be having 70mg of protein daily which I find difficult as I am lactose intolerant and just find it hard to consume so much food.
I am about to try a high protein, lowfat and carb drink and hope that the increase in protein will eliminate some of the fatigue.
I’m just suggesting this as a possibility.