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DiscussionWaldenstroms patient diagnosed with brain menigioma: What to expect?
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Replies to "My doctor is my oncologist that treats me for Waldenstroms non hodgkins …"
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@zeedee1: If you read through past posts on this forum you will find many contributors highly recommend getting a second, and even third opinion. When my meningioma was discovered incidentally during a scan for stroke, my PCP said not to worry. They're benign 97% of the time. I accepted that. Many months later, during my annual check up with my oncologist for b/c, I brought my radiology report and discussed the findings of my 2.7cm. meningioma with her. She agreed with my PCP that it was probably benign but offered, if I would feel more comfortable, to send a referral to a neurologist. I took her up on the offer. The neurologist said that no one would operate in that location, too dangerous. To cut to the end of the story, and save others who have read the long version before, I saw a neurosurgeon at a teaching hospital/university and he said I was going to lose the vision in my left eye if it was not removed. I shared with him that both a neurologist and a radiation oncologist had said no surgeon would ever attempt to remove it. His answer was, "I do one or two a week in that location." The craniotomy was easier than my breast cancer surgery. But the real point of my post is to reiterate the importance of meeting with a neurosurgeon. A neurologist's wheel house is more diseases of the brain, not tumors.