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Moderator

Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

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dyas | @dyas | 1 day ago
In reply to @dyas "@colleenyoung Like magic, i couldn’t help but feel like i was at a concert listening to..." + (show)
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@colleenyoung

Like magic, i couldn’t help but feel like i was at a concert listening to an orchestra led by a world renowned conductor. It was the entire presentation. Perfection at its best.

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@dyas
I am a romantic. All well and good for me but far more is needed. So I asked Sally. Sally felt VALIDATED. The doctor and Research Study Coordinator confirmed Sal should be asking the questions she had and she should be given answers.

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dianegil | @dianegil | 15 hours ago

Hello - I have been following this site since around April 2023. My husband was diagnosed then with 1A PC. Confined to pancreas - 2 cmm tumor. He went through 5 months of FOLFIRINOX and then had the Whipple in October 2023. Margins came back clear with a NCR to chemo. We have been sailing for 2 years with clear scans. Last week we went in and he had what appeared to be clear scans but his CA-19 test came back very high. This blood test for him has NEVER been elevated, even when he started out with PC. Our oncologist is ordering new PET Scan to look for early reoccurrence. The only thing that looked suspicious was a lung nodule had increased by 1 cmm from scans 6 months ago. Has anyone had any experience with this? Looking for any feedback.

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