I have shingles and am astounded at how painful it is. Anyone else?

Posted by greyjen @greyjen, Jul 30 2:20am

I’ve had shingles for two and a half weeks. The spots/blisters/scabs are bad enough but the stomach discomfort is next level. My stomach is swollen on the left side and extremely tender to the touch. I would love to know if this is a common experience and a short-lived condition?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for angel3 @angel3

I got a terrible case of shingles four years ago: I told the young doctor I thought shingles but she said ‘no, just eczema’ four days later I went back to emergency screaming with pain & blisters; oh yes it’s shingles, she said! Too late for valciclovar: I had the most terrible four to five weeks with blisters/ pain etc; eventually it subsided but I’ve had post herpatic pain ever since. It varies between a 2 to 7 pain on my right side of neck going up to scalp. I had the tingling a year later & went straight to dr who put me straight on valciclovar : stopped it within a day or so. Again a year later I got symptoms & straight on valciclovar . This time I thought it was a spider bite: a sore itchy lump & tingling: saw dr a week later: shingles! It’s been three weeks: no blisters just itchy sore in same place as other bouts. I had the shingles vax four years ago; I’m thinking that’s what stopped this being as bad as first time? I’m 68, had chemo in 2015: successfully- could it be my immune system letting me down? Neurophen morning & night help with pain. Could it be something else? Dr said not cancer or spider bite.

Jump to this post

@angel3
I know shingles very well. I had it 4 times in one year after a stressful move from CA to NM.
Could your pain be related to Occipital neuralgia?
or
Postherpetic Neuralgia
https://my.clevelandclinic.org/health/diseases/12093-postherpetic-neuralgia

REPLY
Profile picture for angel3 @angel3

I got a terrible case of shingles four years ago: I told the young doctor I thought shingles but she said ‘no, just eczema’ four days later I went back to emergency screaming with pain & blisters; oh yes it’s shingles, she said! Too late for valciclovar: I had the most terrible four to five weeks with blisters/ pain etc; eventually it subsided but I’ve had post herpatic pain ever since. It varies between a 2 to 7 pain on my right side of neck going up to scalp. I had the tingling a year later & went straight to dr who put me straight on valciclovar : stopped it within a day or so. Again a year later I got symptoms & straight on valciclovar . This time I thought it was a spider bite: a sore itchy lump & tingling: saw dr a week later: shingles! It’s been three weeks: no blisters just itchy sore in same place as other bouts. I had the shingles vax four years ago; I’m thinking that’s what stopped this being as bad as first time? I’m 68, had chemo in 2015: successfully- could it be my immune system letting me down? Neurophen morning & night help with pain. Could it be something else? Dr said not cancer or spider bite.

Jump to this post

@angel3 If you do determine that it's shingles, check out Surivon for shingles. My daughter-in-law swears by it

REPLY

I had shingles a couple of years ago one doc diagnosed just a rash, another did a swab and it was shingles right where the bra strap sits, oh yeah it was painful.

REPLY
Profile picture for angel3 @angel3

I got a terrible case of shingles four years ago: I told the young doctor I thought shingles but she said ‘no, just eczema’ four days later I went back to emergency screaming with pain & blisters; oh yes it’s shingles, she said! Too late for valciclovar: I had the most terrible four to five weeks with blisters/ pain etc; eventually it subsided but I’ve had post herpatic pain ever since. It varies between a 2 to 7 pain on my right side of neck going up to scalp. I had the tingling a year later & went straight to dr who put me straight on valciclovar : stopped it within a day or so. Again a year later I got symptoms & straight on valciclovar . This time I thought it was a spider bite: a sore itchy lump & tingling: saw dr a week later: shingles! It’s been three weeks: no blisters just itchy sore in same place as other bouts. I had the shingles vax four years ago; I’m thinking that’s what stopped this being as bad as first time? I’m 68, had chemo in 2015: successfully- could it be my immune system letting me down? Neurophen morning & night help with pain. Could it be something else? Dr said not cancer or spider bite.

Jump to this post

@angel3

I had no idea it could be so recurring!! I mean I knew it could recur but not like that!!

REPLY

Shingles is the worst pain! It does go away but the advice i would give is as soon as your Dr approves get the 2 dose vaccine!
Hopefully then it never returns!

REPLY

Unfortunately, severe pain is the usual, especially with age. I had it at age 14 and it wasn't a big deal, but getting it as an adult or 40 on up: BAD times ahead. Everyone should get the shingrex vaccine.

REPLY

If the shingles pain is severe, it cannot be described !
Have had it three times. The first two times weren’t bad. The last time, they were severe, lasted three months, and very painful. Sleep was the only real relief. Maybe the shots and meds helped with sleep. I didn’t feel much relief during the day. If you haven’t had the shots, get them !

REPLY
Profile picture for rebe410 @rebe410

Shingles is the worst pain! It does go away but the advice i would give is as soon as your Dr approves get the 2 dose vaccine!
Hopefully then it never returns!

Jump to this post

@rebe410
I've never heard of left abdominal swelling & pain with shingles. Please contact your doctor to get this checked out. I'm so sorry you're dealing with so much pain. It's absolutely awful. And the post-herpetic neuralgia doesn't help.
I had the original Shingrix vaccine in 2018. Then I had the 2 dose vaccine in the spring of 2023. One month later I got the worst case of shingles in my life (I've had it 4 times now). I'm immunocompromised, so my doctor said it probably didn't work for me (he also mentioned that it's only 98% effective). Wishing you good luck.

REPLY
Profile picture for ericamonique @ericamonique

@rebe410
I've never heard of left abdominal swelling & pain with shingles. Please contact your doctor to get this checked out. I'm so sorry you're dealing with so much pain. It's absolutely awful. And the post-herpetic neuralgia doesn't help.
I had the original Shingrix vaccine in 2018. Then I had the 2 dose vaccine in the spring of 2023. One month later I got the worst case of shingles in my life (I've had it 4 times now). I'm immunocompromised, so my doctor said it probably didn't work for me (he also mentioned that it's only 98% effective). Wishing you good luck.

Jump to this post

@ericamonique
So sorry to hear this! My heart hurts for you. Shingles is the wordt pain!
I did use an essential oil rollerball from Doterra, Melissa and it help but expensive. Good luck!

REPLY
Please sign in or register to post a reply.