← Return to Anyone have extreme fatigue with primary biliary cholangitis (PBC)?

Discussion
Comment receiving replies
Profile picture for aeiou13 @aeiou13

Hi, she said it’s a way of pacing yourself based on how you’re feeling. So when you wake up and are about to get “into your day” (whatever that means for you - for me it’s getting my coffee and turning on the tv since I can’t do much anymore). Think about how you feel and give yourself a certain number of spoons to represent your energy for the day. Each time you use energy - again, this is an individual thing - you take away one spoon. For the day you only “exert” yourself as many times as you have spoons. Sometimes things you want to do just will have to wait until maybe the next day. I hope this helps.

I also have checked out “Visible” - it’s a pacer for just this thing; for invisible illnesses. Wearing their (Polaris?) wrist or arm tracker measures your heart rate and will let you know if your body is in “exertion” zone, “active,” or resting. Once you’ve worn it for a few days it sets a maximum amount of pace points for you. Exactly the same concept as “spoons.”

I’m a long-winded talker (and typer, haha) and I know this is a lot. Definitely worth looking into - it really does help. 🙂

Jump to this post


Replies to "Hi, she said it’s a way of pacing yourself based on how you’re feeling. So when..."

@aeiou13
Hi again. Just to be clear, that “Visible” app does have free options, but that wrist/arm tracker will cost money. Didn’t mean to be misleading. I had it and it was great, but I’ve had to retire because of all my health issues so I had to cancel it. I still do check-ins to see my heart rate variability (hrv) and keep my focus on only doing what I feel my body can do.