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Happy August everyone!
I'm writing to let you know about the PREPARE registry for patients with Mild Cognitive Impairment (MCI), operated by our colleagues at Medical University of South Carolina. PREPARE=Participant REgistry for Prevention-focused Aging/dementia REsearch. You do NOT need to be local to MUSC or South Carolina to register!
PREPARE is a registry of people with mild cognitive impairment (MCI) who are interested in participating in non-medication research on aging, MCI, or Alzheimer’s disease. If you join PREPARE, they will record your preferred contact information, relevant medical information, and past research participation in the database. This information will allow researchers to contact you about new studies in which you may be able to participate.
The second and optional goal of this study is to collect survey data from you and a Study Partner of your choosing at 5 timepoints throughout the first year to learn more about the impact of MCI on you and people close to you. These surveys can be completed entirely online.
Click here to see the full flyer for their study. You can also go to their study website for more information and to fill out their interest form.
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I’m just dx’d with early Alz APOE 2/3 and sxs are lost words mainly. May I still join this group?
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1 ReactionI tried to apply and they asked for hubby's entire medical record. They would not accept a copy of the consultation that diagnosed him with MCI.
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1 Reaction@maysh47
Did they recommend any treatment options?
My husband was diagnosed the same APOE-2/3. The Dr said he has Alzheimer’s but I’ve read this isn’t really a diagnosis unless it’s a 4 or 4/4.
What are the recommendations for you?
They want him to do the infusion treatment but the risk seem to outweigh the benefit.